So pain clinic busy and said speak to gp re pain getting worse.
Gp won't refer me to rheumatologist so I have decided that I will go private to get a diagnosis. Appointment Friday this week.
Best questions and symptoms to list before hand??
Thanks
So pain clinic busy and said speak to gp re pain getting worse.
Gp won't refer me to rheumatologist so I have decided that I will go private to get a diagnosis. Appointment Friday this week.
Best questions and symptoms to list before hand??
Thanks
Short answer - all of them!
Try to write down all your symptoms. Start making a list now, keep adding to it as you remember things, then write out a more organised list before your appointment.
(my symptom list was very long!).
A full history is important. Make a list what injuries, trauma, surgery, infections etc you've experienced. What things may have triggered/contributed to your pain.
Try to list things in chronological order - where did the symptoms start, how they have changed over time. Things tend to blur over the years so again writing things down as you remember them then organising into a list later is a good idea.
(I used to start my pain list with bad knees age 7, but actually I was hospitalised as a toddler with scald injuries to my neck and shoulders and I think that contributed to my rounded shoulders and restricted movement in my upper body and then I started to remember the pain of movement when I started school - trying to do a forward roll was sore. My first and only attempt at a cartwheel and I went crashing to the ground.... )
Printing out a picture of a human outline and drawing on that to show the painful areas can be a useful exercise. And quite cathartic.
(scribbles all over for me!)
Think about your range of movement and your posture. How do you use your body? Is it in a good position, free to move without physical tensions or are is your body tense and restricted?
Fab thanknu souch I will do that. I have all the hospital letters for the last 4 years so thats a start
Definitely take a copy of the letters. The more info. you can provide re tests and previous exams the better.
It's easy to get flustered/distracted/nervous in a doctor's appointment so the more you have written down the better. I know from experience the feeling of "ooops forgot that, didn't ask about this, why didn't I mention ... " kind of thing after I've left the office.
Better to ask a silly question and get an answer than to have something rattling round in your head - and remember this appointment is all about you so make the most of it!
Wishing you all the best,
Leigh
Did they say they wouldn't refer you?
Yes the gp said he wouldn't refer me as I dont meet the criteria. Gp is useless x
I wonder what the criteria is.... I know when I (eventually) got sent I was ticking all the boxes. Other than the unexplained moving pain, I had chronic migraines, IBS, bladder problems, hypermobility, anxiety and depression, Raynauds disease, insomnia...the list goes on and they all contribute to a diagnosis of fibromyalgia.
Not sure but I have a lot of chronic pain that moves, anxiety, depression, ibs, joint pain, muscle pain the list is endless. I decided for the cost and to be seen quicker to just pay and get the final diagnosis. Then.if I need help I can get it. Xx
Yes I think if it helps you move on you should do it, people spend the same amount on new trainers these days.
Exactly. I just want the official diagnosis. I was cleared for Ms as I had no lesions on spine or brain but it doesn't explain what is going on. Hopefully I will get the answers I am looking for. I know this consultant specialities are fibro, me etc so I have done my homework 😀 will keep u posted. Xx
I would fascinated to meet anyone medic who specializes it fibro!
He does I read up xx
I'd love to know how it works out for you! I hope you get a diagnosis that makes sense for you.
I will let you know. Are u uk or somewhere else??