Optic Neuritis Challenges

[Greatful25]

Optic Neuritis

I had my first bout last year - which led to my diagnosis. It was on my optic chiasm so it affected both eyes, one much worse than the other.

After almost a year the one eye is at about 100% and the other comes and goes. I did notice last week that it had gotten worse again in the bad eye. I went to the eye Dr. (on my neuros recommendation, and they told me they cant see any inflammation and its not a flare. Mind you they never saw inflammation the first time either. I also have not had pain either time.

Has anyone gone through this? It makes me feel so helpless that I know something is going on and since there is nothing they can do, I just wait. Is this just a part of life now?

Thanks for any shares or insights on the matter.

[BlanketTime1]

i just wanted to offer support in your struggle and the not knowing. it can be maddening.

i've had inconclusive test results a few times now, and while i've had symptoms of optic neuritis (double vision, blindness in one eye that luckily lifted), never told i officially had it. are they suggesting any course of treatment?

i will add that if i overdo it or get overheated, my already established symptoms sometimes worsen for a day or so.

hope you get answers soon. stay strong.