I had my first bout last year - which led to my diagnosis. It was on my optic chiasm so it affected both eyes, one much worse than the other.
After almost a year the one eye is at about 100% and the other comes and goes. I did notice last week that it had gotten worse again in the bad eye. I went to the eye Dr. (on my neuros recommendation, and they told me they cant see any inflammation and its not a flare. Mind you they never saw inflammation the first time either. I also have not had pain either time.
Has anyone gone through this? It makes me feel so helpless that I know something is going on and since there is nothing they can do, I just wait. Is this just a part of life now?
Thanks for any shares or insights on the matter.
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Greatful25
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i just wanted to offer support in your struggle and the not knowing. it can be maddening.
i've had inconclusive test results a few times now, and while i've had symptoms of optic neuritis (double vision, blindness in one eye that luckily lifted), never told i officially had it. are they suggesting any course of treatment?
i will add that if i overdo it or get overheated, my already established symptoms sometimes worsen for a day or so.
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