Mf bone pain

[soomoo]

Hi, I've mf and et and suffering terribly with pain in the bones of my hands predominantly.

I know we are prone to bone pain but wondering if anyone else has/is suffering from the same and what advise to relieve the discomfort. Thanks in advance all.

[JediReject]

Hi soomoo, , I think you need to discuss with your Haematologist if he or she is receptive to discussing potential symptoms of your MF. And what might help relieve it. I had Intermediate 2 MF prior to my SCT but luckily didn't experience bone pain as such as you're describing. I did however get gout on a number of occasions but in my feet which is a painful condition. Don't know if it affects hands.

I do hope you get relief soon.

Chris

[soomoo in reply to JediReject]

Thanks so much for your reply. Hope you're chugging along OK?

[JediReject in reply to soomoo]

Thanks, I'm doing quite well really i reckon for a 60 year old in a Centenarians body. I hate this cold wet weather though and think I would benefit from hibernation until Spring. Sadly I'm not wealthy enough to live in the Mediterranean October to April.

Take care and try get some answers as to the cause of your painful hands.

Chris