Mucuos nos

[Mbzimb12]

I am diagnosed with ET in 2017. Since then i take 1 Hyrea aday.

the mucous membranes in my nose have been inflamed for months. A corticosteroid dies net help. No problems in my mouth..

Has any one the saime exoerience?

[Garstongal]

Yes! I have exactly the sane problem and it’s driving me crazy. I must mouth-breathe while asleep every night because I wake up with the most horrendous dry mouth every morning and one side of my nose feels permanently blocked. I did purchase an over-the-counter nasal decongestant but you’re not supposed to use it long term so I only ever used it very sparingly and then worrued about any harmful effects from it so gave up with it. I suspect there’s no simple fix, unfortunately

[Wyebird in reply to Garstongal]

Funny I didn’t realise that condition is mpn related. I use a saline solution.you can buy it from any chemist. And then nasal nose strip. Works really well

[Garstongal in reply to Wyebird]

Thanks Wyebird...will search it out and give it a try.

[Snagglepus]

Me too. My Dr prescribed Naseptin Nasal Cream. It’s a peanut based cream.

Works really well but when I stop using it the problem returns.

[Cja1956]

A few years ago I went to my primary care doctor because of snoring. He prescribed nose spray but it only made my nose bleed. No one ever explained about the mucous membranes but the only nose spray I can handle is saline. I am also ET Jak2 positive.

[hunter5582]

Never heard of this one. I encountered mouth sores and thrush while on HU. Issue is immune system compromise caused by the HU. Wonder if this is something similar.