my partner was diagnosed with prv 2 years ago. S... - MPN Voice
my partner was diagnosed with prv 2 years ago. She now gets attacks [ 3 months] of very bad temper. Is this yet another side effect
It's so frustrating to be told at any age to change your hopes and maybe give up your dreams, once on these drugs we are given the chemical unbalanced state,,,,even our met ableism changes ,one minute dopey needing to sleep ,the next angry full of rage,like the cocker spaniel with its rage syndrome ,suddenly it comes from nowhere ,we can't explain even to ourselves why we do it ,,,so wait ,,until it's passed ,,then talk often it's then the apology is there in the fog ,,door slamming does no good ,my husband has learned to be light on his feet ,,and move fast ,and my dogs disappear ,
Perhaps she is frustrated, angry, worried, feeling guilty, asking why and all the emotions that come with being told you have and areliving with a chronic condition when you know it is not going to get better and you hope that it doesn't get any worse. You are coping with all the horrible symptoms, trying to remain "normal" for the sake of your family but on days you feel like "crap" this is really difficult to do.
When I was diagnosed, I was coping with ill parents and all the usual pressures of life which everyone has to cope with. I ended up being dragged to the gp by my husband because I just couldn't cope. After my body adjusted to being on setraline, it is the best thing I have done, as I feel the majority of the time my coping mechanism is doing not too bad a job. I also talk more openly with my husband, explaining how I feel and my worries which I was bottling up in case I worried him. Someone else said they tried counselling and found this a great help too.
Please do what my husband did, make a gp appointment and drag your partner there! I don't know how things would have gone, if my husband hadn't done this!! Thinking of you both Aime x
Hi divot,
I find I get a bit like that but more so a couple of years after initial diagnosis,. After realising that I can actually talk to my wife (though at first she used to get angry with me too at first. ) about how I feel it got a bit easier. Facing my condition head on was a painful but ultimately helpful process. The anger nearly always stems from hurt, most of us men find it difficult to express emotional pain and fear so we often bottle it up until we explode. So it gives of a fake appearance of strength, when in reality we're breaking down and don't really know how to find rest in this despair and thing that has been trying to take away our independent life style we used to have. It really does hurt and it's an uncertain place to be.. the confusion symptom that comes with MPD's doesn't help much for processing it all. But she [Edit] will have good days we're everything's as clear as bells.
I really hope you both have a good fruitful conversation about what she's [Edit] going through, and remember you're experiencing this with her [Edit] emotionally and mentally too... she[Edit really embarrassed now!!] might be worried about what its doing/going to do to you.
I hope that helps
God bless you
Geoff
P.S.
Sometimes lack of oxygen getting to the brain can do this but unfortunately thats to be expected with prv 
Hi Divot, I agree with the comments above, a MPD is such a difficult thing to come to terms with as it changes your life such a lot and it can be so frustrating not being able to do things so easily and to be tired and in discomfort and I think this leads to bursts of temper, I also think we who have the MPD often worry a lot about how our partners and family members are feeling about it all, how worried they are about us and how difficult it is sometimes to help us, and us worrying about them doesn't do us any good at all. If either of you would like to have a buddy to talk to then please let me know, email me at maz.cd@mpdvoice.org.uk, it can help to talk to someone about it who really understands, and that is why we are happy to match up partners and family members with buddies so that you can learn from someone 'detached' from you what it feels like to have PV, ET or MF, or maybe speaking to her GP about it might help, he/she might suggest some counselling or some strategies to help her cope better. Kind regards, Maz.
Maz cd ,you know when we go to the clinic at hospital we all sit side by side buried in a year old magazine ,homes and gardens ,,we never speak even to the person sitting next to us ,we are all in a similar situation ,,afraid,worried ,what our results our blood tests will uncover this month ,we need to just ask more questions ,the doctors have limited time,we who are living the problem can answer more day to day difficulties we have the time to listen ,,it's only by communicating we understand and learn ,, P.s.maz you are a marvel !!
I am definitely less tolerant and more impatient than I used to be. I think this probably shows in me coming across as more grumpy than I used to be. Whether this is related to having ET is questionable as I am approaching 40 so could equally be age related!
Ruby, you are just a young thing - I am 56 and grumpy too! I think we maybe get less tolerant as we get older but I also think we are all coping with some horrible symptoms which really affect our lives on a daily basis plus the pressures of everyday life! I think we have a right to be less tolerant - at least sometimes. I tend to go to bed early to avoid grumping at my hubby - at least my kids are grown up! Take care Aime x
Thank you
Hi rubyubyruby,,I want to recommend joining up with a buddy ,I have a really great mate who lives soooo far away ,up in the beautiful wild north .her life so different to mine but busy and interesting ,her family and friends I never meet but now seem like extended family to me,we often chat we both have sleepless nights so sympathise and so many side effects the same ,maybe we will never get to meet ,but just to have her as a contact is reassuring thanks to MPD Voice opening doors ,,,don't be a stranger,,xx
I had a buddy when I first found MPD voice 2 years ago but our contact fizzled out unfortunately.
Hi Guys, definitely go for the buddy option - it is great to be able to speak to someone who DOES understand!!xx Aime
Two years is a long time honey ,,loosen up ,,hold out a hand .someone out there will gently give it a shake ,all these questions you are asking it's that you need to unburden to a someone who maybe understands and more,,cares,you got a lot of issues ,,but once aired they Slowly. Melt. Away,, you need a new buddy. Believe me !!!
Learn to twinkle ,,,
Twinkly - I actually find some of your comments quite offensive, like I need to 'loosen up' and that I have 'lots of issues'.You don't know me and have know idea of my personal situation and the affect my diagnosis has had on me and my family.
I also don't feel that 2 years is a long time!
Sorry ruby ,take care the one thing we can hold on to is Our sense of humour .
Every curve ball is another learning curve ,,this is life's colourful adventure ,
Just to say I have ET and do not have a stressful life but am very impatient. I am inclined to think the illness has something to do with it. I used to be very laid=back' tolerant and accommodating but not now. I don't even have the excuse of difficult side effects to offer. I think the best thing to do is to get enough sleep (if you can).
Do you all think that since being dx with an mpd/n that its the result of us all feeling lifes too short to mess about?
I know I do now.
Never thought of it that way but maybe you are right. Take care Aime
