What other resources / forums apart from MPDvoicehealthunlocked do people find useful for information about MPN's ?

[ETphonehome]

[Geoff_mpnfamily]

Hi ETphonehome,

I tend to stick with information published by the 'British Commitee for Standard in Haematology' (BCSH).

For family and freinds I direct them to McMillan.

[MFBMT2011]

Look up MPNForum , a free online magazine that is run by patients and includes patient stories, articles and a periodic 'ask the specialist' section where patients questions are put to leading world specialists.

[shellsween]

Facebook have many groups and they share some wonderful information, I have learn't much and also how treatments differ. Great support available on FB.

[dmiller1961]

Since being diagnosed with Primary P. Vera, JAK2+ Dec. 2014, I have found most information regarding my blood cancer directly from the MPN experts in the United States and other countries who are doing all the research on genes and treatments/clinical trials of these disorders at the Patient Power web site. I plan to go have a consultation with one of the experts in NYC to work with my primary Heme/Onc who I see regularly.