Hemicrania continua

[pratyaya_23]

HelloAnyone here dealing with Hemicrania continua. I tried watever medicine, injections but nothing is helping. Any suggestions

Thankyou

[Wrexham16]

Hello. I see you are in Australia. I am in the UK so this may not be available to you. I suffered badly with Hemicrania continua. I tried all the recommended drugs but they did not work or made me ill. Finally my consultant put me on prescription melatonin. I had to experiment with the dose but eventually settled on 9mg at night and that has kept it under control for years. I've never slept well since I started to take it but to me that's better than the pain. Hope you find some help.

[pratyaya_23 in reply to Wrexham16]

Ok, I'm on Indomethacin at this moment, taking max. dosage but still get it..!! My doc. prescribed me this medicine to try, ( frm USA) but its side effects, i can't handle coz im already struggling with mood swings, anxiety n insomnia But thankyou for replying 🙏

[Wrexham16 in reply to pratyaya_23]

Hi I hated indomethacin because of the side effects and eventually it caused ulceration throughout my gastric system so that forced the consultant to go down another route. Also now I can never take ibruprofen if I have a muscle injury because of the permanent damage to my gut. So do try and find something else if you can

[pratyaya_23 in reply to Wrexham16]

Oh ok.... will talk to my doctor

[richelle0903]

Hi what helped me was Botox

[LaPainting]

I too suffer from this condition and couldnt tolerate Indocin..I am on nothing now and have to try and bear the pain and would love to find something to help.