PBC, just been diagnosed after liver biopsy. Consultant appt is next week, unsure which questions to ask.

[P13jne]

PBC

[MaryF]

I read a previous post of yours, have you been tested for Hughes Syndrome/APS, an autoimmune condition often missed and in particular missed by Neurologists. I enclose the symptoms and also the blood tests needed, also on the front of the charity website a list of medical consultants who understand the condition, ghic.world/hughes-syndrome/ ghic.world/hughes-syndrome/...

academic.oup.com/rheumatolo...

MaryF

[P13jne in reply to MaryF]

Thank you MaryF, I did re read my last post when my migraine occured, but I haven’t had another 1 in the last 6 years, I will look into Hughes Syndrome, and ask my consultant about the possibility of this too, thank you again for the feed back. I’m struggling with the side effects of PBC, all advise is very welcome.

[MaryF in reply to P13jne]

Often in families, members past and present, heart attacks and strokes at at early age, if female, miscarriages and stillbirths, also other autoimmune diseases including Thyroid problems going on. MaryF

[P13jne in reply to MaryF]

I have thyroid issues too,

[MaryF in reply to P13jne]

Have a very good look through the website at the symptoms etc, you may well find they fit! Insist on being tested, you need all three tests done. MaryF

[P13jne in reply to MaryF]

Thank you, I’m looking through the website now, I will ask,