What affects your participation (post... - Myasthenia Gravis...

Myasthenia Gravis Association

420 members • 90 posts

What affects your participation (posts and comments) on the community? Select all that apply

CalvinHU8 years ago7 Voters

I am happy just reading

I am still learning about the community, but I plan on posting soon

I am waiting for the right opportunity to join the conversation

I feel like i don't belong here

I feel I have nothing to say

I don’t feel comfortable talking about my personal health

I would like to participate more, but I haven't had time

3 Replies

•

Loisaelene8 years ago

I don't know enough about MG but like to learn a lot. Especially about handling heat and having more energy

corbollis8 years ago

I keep up with a couple of other groups

hunkydory8 years ago

I have never posted because there does not seem to be anyone here. My 33 year old daughter diagnosed with MG in January 2016, Had surgery late March to remove thymus and found it had a very large tumor. The tumr is not cancer it is a thymoma, The removed all of it except for small amounts attached to phrenic nerves and aorta. Her Kaiser hospital just sent her to MD Anderson cancer research center for evaluation. She has returned to Hawaii for chemo and if the remaining tumor shrinks then she will go back to MD Anderson to redo her surgery to remove the rest and will probably get radiatin treatment after that. Antone out there with thymoma?