Hi to my friends here. I hope you are all getting better and enjoying life.
As I said in my title, I have now passed the 3 month mark. About 3 weeks ago, I stopped having what one poster so aptly called the "series of false dawns" where you have moments where you feel almost normal, followed by feeling so dreadful you have to go lie down.
I have certainly pushed myself, and 3 weeks ago, the false dawns stopped. I have felt dreadful since. You all know the exhaustion and my brain seems to be working at half function. I still cannot follow complex thinking, execute a recipe, and reading and typing are very difficult. If only you would see the errors I make before spell check alerts me!
Have others experienced this? What happens after? Is this the best I can expect? There is no way I would be able to hold down a job (I have been looking for employment since before the meningitis). I am a very physically active person and I am looking after a house on my own, but I can't do the physical activity I once loved, or socialize without paying a heavy price.
I am an amateur musician and playing my instruments not only exhausts me, but I will be playing and suddenly have no clue what the notes are, what fingers play them and my hands will sometimes do something entirely of their own accord.
I have a numbing fatigue. Sometimes I can't sleep at night, in spite of it.
I swear the brain damage is getting worse, instead of better. Is that possible? Does the herpes virus continue to cause damage after the initial illness?
I have not gone to my doctor, who is an hour away. I don't believe she has the experience to help me and when I asked for a referral to a neurologist, she said I am fine neurologically. She should see me type! Lol.
I now get car sick. Even driving myself. I have a lot of lingering nausea and headaches. It somehow feels like I have become "stuck" in illness and am not improving?
Anyone? Have you experienced this? Does it get better? I feel so fragile in every way. My body, my existence feels very fragile.
Thanks for listening. xo
Any sharing of experiences would be most helpful.