Swooshing sound in ear : Not sure if anyone... - Meningitis Now

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Swooshing sound in ear

Day7 profile image
Day7
8 Replies

Not sure if anyone else experiences this but seems like the swooshing sound in my left ear is more intense the night before I'm going to have a bad day the best day. Bad day I'm talking about the horrible head pressure and vomiting. Now not sure if it's just a coincidence or if it's my body telling me I did to much that day? And happens mostly at night or when I get up quick. I get fitted for my hearing aid Tuesday because my ear has suffered some damage 😔 Staying positive through this all but can't help but to be a little down because of my outcome through it all. I havent felt myself yet and know I'm in the early stages and must be patient. Sometimes when people tell me those famous words "you'll be alright" I look and them and think you have no idea what I'm feeling inside. No idea what I've been through its so hard to explain to anyone. I sometimes don't even know what's going on with me. So many different emotions to explain. Don't know if what I'm feeling anyone else feels the same but if so I'm so glad someone out there can relate to me.

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Day7 profile image
Day7
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8 Replies
StrawberryCream profile image
StrawberryCream

Hi. I think we all get those days where we end up doing too much and then we experience worse headaches than in an ok day, increased fatigue etc.

I also suffered damage to my ear and for sometime was experiencing that sound in my ear. Take a look at Pulsatile tinnitus as may explain what is happening. I have copied two bits about it for you -

"Pulsatile tinnitus is the type of ear noise that is perceived as a rhythmic pulsing that is often in time with the heartbeat. It can be experienced as a thumping or whooshing sound".

"This is a rhythmic thumping or whooshing only you can hear, often in time with your heartbeat. The most common causes of pulsatile tinnitus include: Conductive hearing loss. This type of hearing loss intensifies internal head noises — sounds such as breathing, chewing, and blood flowing through the ear".

AlliG profile image
AlliG

Sorry to hear you are struggling. I've had some ear problems too, hearing sort of sounds muffled. Like you, this is more noticeable on the bad days when the pressure in my head is worse. I went to my doctor about it & she thinks I might have some sinus problems where my immune has been low. Might be worth checking?

Hope you start to feel yourself soon, all I can say is it takes time. I was really impatient & frustrated but the better days have started to pop up. Stay positive xx

Mdroney profile image
Mdroney

Hello, yes I also suffer with the tinnitus , but mostly at night when going to bed . This disease is frustrating, because, unfortunately, unless you have it, no one really understands it. When i over do , I find the head pressure, pulsing & tinnitus is much more severe , in addition to frequent blurred vision , I've had a definite personality change that I'm still trying to get use too!! But I deal with symptoms because I know a lot of folks on this web site are dealing with much worse symptoms! I just take one day at a time , it helps ! All the best to you!!

bekele profile image
bekele

I got VM 4 years ago and still have that buzzing and pulsing in my ears,I still get headaches daily and low grade fevers once or twice a week.Whenever I push myself too much in the yard I get a warning that it's enough because I don't want to bring on a headache and suffer during my down time. At night the pulsing sounds worse because everything around you is quiet. My VM was never diagnosed as to what kind it was, but encephalitis and mollaretts was mentioned in my diagnosis. They say the brain could take up to 10-15 years to heal from this. I've seen 4 Neurologists,4 ENT specialists,5 Infectious Disease Doctors,5 Spinal Taps and they don't have answers. I will say that my first year was extremely TOUGH and I think that I have learned how to deal with the pain factor better.Ice packs are still used daily to cool my head because my head is always HOT.Good Luck to You !!

sopie profile image
sopie

I relate completely --- sorry u experience these feeling also. I hate it most of all when people look at u and say-- you look fine-- when I feel like I am falling inside--- or the ringing is so loud in my ears-- but please know I understand you and the positive front we seem pressured to always put on for others-- some days I just want to not pretend I feel fine and lay down and just rest !!!!!

becca823 profile image
becca823 in reply to sopie

I think one of the hardest parts of dealing with this disease is no one around you get it...I am one month post VM and know I have a long road ahead..but I feel my boyfriend and kids are sick of it and think ...oh its been a month since shes been in the hospital ..she should be fine now...I seriously feel like an inconvenience...my boyfriend refuses to research meningitis ..says he doesnt need to as he just listens to what I tell him about it. He tries to comfort me with words but I know by his actions he doesnt take it seriously and I feel like I complain all the time ...and of course with the doom and gloom feeling and being isolated I sometimes think breaking up would be best for him :(

Runnerma profile image
Runnerma

Can empathize with the swooshing sound in your ear! It does seem louder after doing too much, but it is difficult not to do when you have a "good" day. I was told hearing aid wouldn't help. Trying a no/low salt diet, diuretic & Robinul - not much help at this point. Also, can relate to so many emotions. I am just so tired of not feeling good & want to feel normal again! My prayers go out to you!

Loganjay profile image
Loganjay

Hi I had punacoccal menegitas 6 months ago and had the same sounds my doctor told me to put the radio in between channels and listen to the white noise this would then train you brain not to listen to the other noise. It has taken the edge off the noise I would try any thing hope this helps.

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