Topiramate 50mgs

[Covenham]

Hi :0

Just wondering if anyone has been prescribed Topiramate for migraines following Meningitis and how they are finding it?

Looking forward to hearing from some of you

[daffodil]

I was prescribed this and unfortunately wasn't able to tolerate it at all,despite persevering for a month.They made me dreadfully nauseous and unable to eat.I have had better results with Pizotifen and Gabapentin which I take together and they reduce my daily migraines to a couple a month.Sorry cant write more but moving house tomorrow.

[Covenham in reply to daffodil]

Thank you daffodil; I really appreciate you taking time away from packing up your home. Good Luck with the move

I'll look at those alternatives you've mentioned - thanks.

[StrawberryCream in reply to daffodil]

Hi Daffodil

We haven't chatted for ages and have wondered if you ok. Hope your house move goes as well as it can tomorrow xx

[daffodil in reply to StrawberryCream]

Thanks -hope to be back on forum much more regularly once settled into new home.

[Blim]

My son takes this for migraine but he hasn't had menigitis (I was the one who had BM). I was very wary because there can be some nasty side effects but the only side effect he seems to have is itching and a rash. I don't think it was particularly good but he has just had an ocipital nerve block and the meds increased so we wait and see. I am on amitriptyline for headaches and it has reduced the everyday pain but not the big headache a couple of times a week. Hope you find something that works. Best wishes Blim

[ignoreit]

Several people replied to your question but I'm wondering if everyone's headaches are throbbing or non-throbbing. I ask because I contracted meninococcal septicaemia 38 yrs ago and suffered with non-throbbing headaches for years. But now...I've finally figured out (thru trial & error) how to get them under control. But I have to point out that mine are NON-throbbing.

Are yours also NON-throbbing headaches?

[Covenham in reply to ignoreit]

Hi all - I'm so sorry for not replying to all your Posts from my original question but I genuinely didn't think I'd get that many responses to it.

I've been very interested in everyone's replies and the variety of medication offered and/or taken by everyone.

I get almost silent migraines (aka non-throbbing ones) even though, my neurologist refers to them as 'severe migraneous attacks'.

My symptoms are probably similar to most peoples - light sensitivity, noise sensitivity, nauseousness (sometimes vomiting), flu-like feelings and the pain is behind my right eye and up into the right side of my head. I take Panadol Extra for pain relief.

I feel totally exhausted and I'm 'zoned out' for several days after these attacks.

Topiramate has helped control these headaches and I'm now down to 25mgs twice a day from 50mgs twice a day. However, I've lost weight which is a problem taking this particular drug and it's given me a dry mouth.

I cannot take Beta Blockers, as I have underlying Asthma.

It's so hard to know which part of me is feeling the way I am due to the post-effect of having had Meningoencephalitis and which part of me is re-acting to the medication - how does anyone know? I also have another long-term condition running alongside this called Bronchiectasis, which I have to take a lot of medication for every day.

Hope my answer helps . . . .

[maineknitter]

I'm on that and amitriptyline for the migraines. I've been having it for a couple of years now since getting the bacterial meningitis. I went from daily migraines to only 66% of the time. Still a lot of the time, so my doctor is trying Botox injection therapy. I've had two shots sets, but no change yet.

[betezel6]

Hi! Has anyone ever had Recurrent Non purulent Meningitis that is caused by an injury to the skull base?

[herbmonster]

I had VM in august and a one of the presents it has left me with is migraines. I started taking toprimate just before Christmas under the guidance of the neurologist as can't take beta blockers as history of asthma. I started gradually building up slowly over a month to a dosage of 100mg a day taken in 2 tablets of 50mg. Have to say the constant migraines have subsided to possibly one a week but I do seem to get what I call a bee sting headache most of the time and I am extremely tired and my appetite is near to non existence. I am going to persevere with them with another month as they have enabled me to return to work on a phased return, something I could not have done without them. Also the side effects as I call them could just also be the side effects of the VM still. It us just so hard knowing what is the medication, what is my body still recovering, what us me trying to run before I can walk? All are just having an impact but I am just so grateful that each day I am managing to fo a bit more and coping.

[Claudeminh in reply to herbmonster]

Hi I also have chronic migraines after vm in oct 2012. im on beta blockers and have had mixed results but mostly good. However, due to sensitised nervous system I feel neuropathic pain and consequently ache and moan a lot. Many people post vm have tough times with pain. It's prob the same thing for you as the central nervous system has had huge shake up. Talk to your dr about it to see if they can help you. I take endep at night 50 mg and it turns it way down. It's really good for pain and has few side effects for many. I am a bit fat though as it turns your appetite up. That's a bit of a bummer. Anyway hope that helps you, any pain symptoms are prob from the vm and not the drugs.

[EmzG]

I have suffered migraines for about 15-20 years and tried all sorts, I went on to topiramate initially 25mg twice a day and then up to 50mg twice a day about 18 mths ago. I have had no side effects.

I didnt have meningitis (meningococcal ) until Nov last year but have continued to take topiramate at 50mgs and it has continued to help with no side effects. I hope it helps you too.