Introduce yourself

[MaddieHU]

Why not leave a short comment below and introduce yourselves. Give as much or as little information as you like. Feel free to ask your own questions here: healthunlocked.com/write/me...

[Slane]

Hi there everyone my name is Sarah, I'm 34, currently fighting this battle but doing good, glad to be part of this group, hopefully we can help each other 👍

[MelSupportAdmin-Ire Administrator in reply to Slane]

Hi Slane glad you could join us and glad to hear your doing well

[Stage4mom in reply to Slane]

Hello Sarah good to hear you are doing good, are you having treatment at moment?

[Slane in reply to Stage4mom]

Hi, yes I’m currently on a 6 week course of radiation , had the 12 weeks of ippiluminab and waiting to c oncologist to c what next stage is 🙏

[Stage4mom in reply to Slane]

That sounds like a lot to cope with I've been lucky no radiation were there many side effects i heard its pretty hard

[Slane in reply to Stage4mom]

The 1st 2 weeks were fine, the last 2 weeks awful, as the radiation is going from from lymph gland right up to my neck, my throat is all inflamed and finding it difficult to swallow a lot of the time, I’m on a purée diet and mouthwash and anti acid tabs for few weeks, my skin is getting sore red and tight but managing it with creams, I have 12 sessions left thanks god, it’s doin the job so Il cope with the side affects x

[Stage4mom in reply to Slane]

That sounds pretty grim but as you say you can cope when you know it's doing something. Hope your not losing too much weight with the puree diet have you tried the ensure drinks from chemist to keep the calorie count up might be worth asking about

[Slane in reply to Stage4mom]

Could do with losing a few pounds 😂😂 be worth it in the end

[MelSupportAdmin-Ire Administrator in reply to Slane]

Hi Slane just checking in to see how you're doing are you finished radiotherapy now?

[Slane in reply to MelSupportAdmin-Ire]

Hi, I should have been finished today but they are doin another 5 days boost for me, I didn’t have a good few weeks, I ended up in hospital for a week with pneumonia all treatment related, I’m home a few days but resting a lot I have no energy, my whole arm pit is all broken from radiation it’s badly burnt so not feeling good at the minute, however had a good scan and it’s keeping me positive x 5 more to go 💪

[MelSupportAdmin-Ire Administrator in reply to Slane]

Sorry to hear you have been having such a hard time but you seem very positive which is brilliant. I hope you have good support at home and you are able to rest as much as possible. Have they given you anything for the burning and pain relief

[AnneMJ]

Hi Sarah. I've just read your posts. So sorry to hear you are going through such a rough time. It really sucks. Hang in there and hopefully things might improve in time. Sending good wishes to you. Xx