Very ill: This is so hard to do the... - Lung Cancer Support

Lung Cancer Support

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Very ill

SusieJo1948 profile image
25 Replies

This is so hard to do the cancer is still gone. But I have emphysema they took the upper Left lobe out its been 7years.my lower left lung stopped working no air in or out.my right is in bad shape as lot wheezy and coughing big globs of nasty stuff And they hurt bad.My heart is enlarged. My. Stomach hurts. I'm down to 114lbs.I have from swallowing gets stuck. Have to make it come. Up. I'm really so tired my oxygen goes Up And down it has dropped too 32normally it's between 70-80's.I'm wearing oxygen 24/7. I'm not going to hospital I'm going to die at home. I've fell a few times cracked 3ribs. I'm staying on here as long as I can I'm not going yet the nurses come 5days a week now.. My mind and fingers still work. I love you all so much. Susie jo

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SusieJo1948 profile image
SusieJo1948
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25 Replies

SusieJo, May God bless you with comfort and courage and many earth-angels to care for you. Like others, I remember you were one of the first (or The first) to reply to my first post. You are a wonderful asset to this community, and it is so generous of you to help so many others through your sharing your experiences and encouragement. Xoxo

Denzie profile image
DenzieModeratorVolunteer

SusieJo,

Sending prayers for peace, no pain and a gentle landing. When my time comes I hope I’ll still be able to share love and caring the way you do

Sending prayers, and gentle hugs your way.🙏

jenrodrigues profile image
jenrodrigues

Hugs Susiejo1948. Sorry to hear it’s been rough for you as of late. I’ve been fighting almost 11 years. At one point they drained my lung of the fluid and the coughing substantially stopped. It was horrible. I’m not sure if it is a possibility for you. We all have different treatment on the same journey. Please keep your head up you have done an amazing job for many years. Enjoy any minute you can. I always relish in that thought. I’m still here enjoying my children, now grandchildren and friends. I now have another one on the way!! I never thought I would see Grand babies!! My oldest son turns 30 tomorrow. May our tomorrows bring us hope and joy and for you a little less suffering. 🙏🏼

yessirmam profile image
yessirmam

You are blessed in that you have affected, and still affect, so many people for the better. And that makes us blessed. Not everyone has the talented mix that you have and share: compassion, guidance, knowledge, generous with time, and sharing those gifts. It saddens me, and certainly many others, to know of your current challenge. Love, light, and blessings to you. I’m pulling for you to have minimal hardship- know that you are loved.

JanetteR57 profile image
JanetteR57

SusieJo, I hope you can get some relief from your pain and discomfort soon. Your fighting spirit has served you well so far and helped others no end. Thanks for being so willing to help others. thinking of you...

Gatorb8 profile image
Gatorb8

SusieJo I am so very sorry that you are suffering. You have been such an inspiration to me that there is life after a cancer diagnosis. Thank you for being here for all of us dear! Hoping that your breathing gets easier and you feel better.

Gwennewcomer profile image
Gwennewcomer

I’m praying for you Susie. I’m so sorry to hear your going through this and are having pain. Hugs and Love going your way.

Lyubov profile image
Lyubov

Prayers, SusieJo, to ease the pain in your body & to keep your spirit strong as always!

PegD profile image
PegD

SusieJo, your generosity of spirit and support has helped so many of us here. You have been a bright light in a landscape that is difficult to navigate and we have benefited from your encouragement many times over.

Wishing you Peace.

Beepers7 profile image
Beepers7

SusieJo,

My heart ached as I read your letter. I only meant you two months ago but feel I’ve known you much longer. You answered my first call for help on healthunlocked. Your words and encouragement brought me hope and courage. 😊 thank you so much.

As you now face your pain and suffering I want to bring you hope. The hope of eternal life. A life after our earthly tents fall. A new body awaits us in heaven. No tears, no pain and old friends and family await our arrival. It is written and acknowledged over and over in God’s word in the Bible. It’s a living Hope we can cling too in our final days here in earth. Jesus is waiting for you and the rest of us in heaven. I personally believe this more than ever and it gives me such peace of mind.

Sorry for the sermon, but I couldn’t find Hope but in Jesus,

Love and prayers SteveO

Ncpoet profile image
Ncpoet

SusieJo, I am so sorry you have been suffering so much. You have been a positive force here and I wish your life were easier for you. Sending, hugs, love, and prayers for peace. You are not alone.

Judy

annkezar profile image
annkezar

SusieJo,

I am so terribly sorry for your current difficulties and suffering. I hope that these ease as much as humanly possible, and that you can continue to build on your legacy of compassion, caring, and empathy here in this community. You have helped so many of us in some of our darkest times.

Gentle hugs and fervent prayers,

Ann

Gingerbeer profile image
Gingerbeer

I rarely post but have read your posts over the past few years. You have always inspired hope, confidence and comfort to those of us who need it most, at a time when we feel so lost. I thank you for that. I hope that you can feel the true appreciation and encouragement so many have for you and as we travel on this journey together.

Unicorn1967 profile image
Unicorn1967

Hugs 🤗

anrean profile image
anrean

Dear Susie Jo,

Thank you for being a bright light for all of us on this journey. I don't often write, but many times you brighten my day with your kind, loving spirit! Praying that this is a temporary setback and that God hold you firmly in the palm of His hands,

KimGO2 profile image
KimGO2Partner

Dear SusieJo, Thank you for sharing your update with us. So glad your mind and fingers are still bringing such an inspiration to many. Let the nurses take care of you and reach out to Palliative Care (Supportive Care) if you have not already. Hugs to you!

Warmly,

Kim

Sorry to hear you are so unwell right now ,unfortunately the doctors do not yet have all the answers ,to treatments cures and management .I cannot really comment too much on your current situation .I can say ,I am glad you have managed to stay at home and are as comfortable as you can be with community nursing support and family .I will be thinking of you and send you a hand of comfort in these troubling days .x Diane

JanetteR57 profile image
JanetteR57

how are you doing now SusieJo?

SusieJo1948 profile image
SusieJo1948

Bad. Left lower lobestill not working no air in no air out. I'm afraid its going callapse. Thanks for asking makes me feel a litttle better.. how are you doing good i hope. Love Susie

.

Lisamk55 profile image
Lisamk55

Praying for you Susie Jo.

Lesleykay21 profile image
Lesleykay21

Thinking of you SusieJo! Hang in there I hope things get better for you. Praying! 🙏🏻

Lesleykay21 profile image
Lesleykay21

Does anyone know how SusieJo1948 is doing? Denzie ?

Denzie profile image
DenzieModeratorVolunteer in reply to Lesleykay21

I’ve tried to find out. She hasn’t posted anything on Facebook. I haven’t had any chain mail on Messenger and she sends it quite regular.

As some of you know her cancers were well under control but her COPD (emphysema) was getting worse and she entered end stage. She was put on hospice just before she write this.

I’ll reach it to some of her Facebook friends and try to learn more.

Lesleykay21 profile image
Lesleykay21 in reply to Denzie

Oh gosh, that's awful to hear. Thank you for looking into it! Hope she's okay or at peace. <3

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