What has been your most useful informat... - Living with Asthma

Living with Asthma

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What has been your most useful information source for learning about living with asthma?

CalvinHU profile image
22 Replies

Your doctor? Patient groups? Online? Or somewhere else?

Respond and reply to others in the comments below! :)

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CalvinHU profile image
CalvinHU
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22 Replies
sssstephanie7_ profile image
sssstephanie7_

I’d say a family member who had asthma & COPD, online and my doctor. I’d say the most informational source would be my doctors.

Mahod profile image
MahodAsthma Captain

Online sources by far have been most helpful.

I have found following postings here and foundation site leads check out a treatment or tool someone used. Most recently, through this survey, I was forced to look at how my asthma is managed. Do more online research, have questions for pulmonary doc and learn new tools to help myself.

Learning from others that truly understand and want to help themselves improve.

Asthmagirl100 profile image
Asthmagirl100

Oneline support groups and searching online health sites. When I first got asthma I knew nothing. My doctors told me nothing. Thank God for online support groups and online health websites

Cherylquinn profile image
Cherylquinn

I have learned from talking to other people and googling info. I have learned some from my doctors.

trisham profile image
trisham

Most definately online, articles an online support groups

trisham profile image
trisham

Definately online ... from articles from webmd to Mayo clinic, also support groups . Unfortunately my drs have been less than helpful. They dont have time to listen. Its beyond frustrating.

Gigionthehill profile image
Gigionthehill

AAFA has been a tremendous resource for me. I also read many articles by NHI.

Lori62 profile image
Lori62

Hmm, that’s a tough one, since I was born with it and knowledge about asthma and medicines have changed. I’d have to say my parents, because they wanted to know as much about it as possible, growing up. Then Doctors, then reading, and other people that have it.

Suspect1 profile image
Suspect1

My dr who is an asthma specialist locally has probably been the best source other than that it is what I read on here

kdr112 profile image
kdr112

Definitely online! The doctors seem too busy but do give good seeds to research. Support groups are fantastic! It is living breathing information!

Lisa_H profile image
Lisa_H

Definitely online. My Doctors office is so busy and they see so many patients that I don't feel they give you their full attention. I have to make it a point to stop him from rushing out of the room just to get some questions in. Coming here to see what others are dealing with and to hear their experiences, and being able to share with people who really understand has been extremely helpful to me.

rafester profile image
rafester

Learning from my own experiences with treatments and meds.

Putnam profile image
PutnamAsthma Captain

Almost all my information had been from on line. It’s almost like a second job.

Mahod profile image
MahodAsthma Captain in reply toPutnam

Hi Putnam,

I laughed when you said it's almost like a second job. It definitely is! How do you decide on best source information? Any favorites you can share??

Thank,

Mary

Putnam profile image
PutnamAsthma Captain in reply toMahod

You know, I just read it all. Sometimes I think I know more than the doctors. You really have to educate yourself. Doctors can’t spend a lot of time with clients/patients, so it’s up to you. Actually thinking of moving out of New York, at least for the winters. The in door air is a killer for me.

Mahod profile image
MahodAsthma Captain in reply toPutnam

Thanks. I believe in educating myself too. My doc is a great listener and welcomes information I find. Still, we are our best advocates.

I live in country, 155 acres. The woods can be an issue (I mask outside) but getting out of City pollution has been a definite plus!!

in reply toPutnam

Unless your doctor has asthma, you probably do more.

kait109 profile image
kait109

Online and through my doctor

For me, WEB MD. I’ve leatned so much there and it was always confirmed by my PCP, who knew my asthma inside out and backwards, as accurate. (Unfortunately she has relocated. I’m having a hard time replacing her!)

VinswaynW profile image
VinswaynW

WebMD, Google and now HealthUnlocked.

Sharaybia profile image
Sharaybia

I'm 27 years old few older adults in my family have cold. I learned I had asthma was I was 4. It gotten worse in 2009 and in 2012 I was put on a ventilator. Everybody under me(family) gotten asthma. But I learned all my sources from my doctor than I found a support group. It's better hear from people who has asthma because everybody asthma does them different

The Pulmonology Rehab Department at St. Thomas Rutherford. They are staffed with respiratory therapists, RN's, and physiotherapists. They treat all of you! And their support group is great.

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