Hi I am new on here, I am 48 and just been diagnosed with lipoedema. I am at stage 3 and I have had this all of my adult life without any knowledge. Unfortunately the doctors are not really aware of this condition and just brush it off. However the nurses seem to be more aware. It was a nurse in hospital that asked me if I have been tested with regards to my legs as they are very big. no I said the doctors put it down to obesity. I am overweight and it does not help your lipoedema if you are overweight. Over the years I have lost more than 6 stone, however there is not much difference on my arms and legs. I was told by my nurse that unfortunately losing weight with lipoedema will not work.
I am not sure this is true, I think certain foods can help, and I am going to try this for a few months to see if this works. I am not giving up as I cant walk properly and the pain can be really bad. I am one of the lucky ones at least I am still mobile.
The main thing I hate is the support stockings they are dreadful and I find it very hard to use these. I have to try anything, the last resort is liposuction and that cost over £35,000.
My doctor tried to get me a grant but I was turned down.
Anyone who has any ideas to make life easier please let me know!