Keeping up to date with research studies - Leukodystrophy Su...

Leukodystrophy Support

195 posts•

Keeping up to date with research studies

•0 Replies

We have recently put together a research summary, which includes information about recent and existing Leukodystrophy studies, which you can find on our website:

alextlc.org/how-we-support-...

What sources do you use to keep up to date with recent research?

Not what you're looking for?

You may also like...

Do you want to get in touch with someone with a similar experience of ALD or AMN?

If you do, we have a contacts list full of people willing to provide support about all aspects of...
•
22 Replies

Hi, I am looking for some advice on follow-up of asymptomatic men with ALD. My brother is 32.

I have read the latest review article relating to regular MRI scans and adrenal function tests. Has...
danemead profile image
danemead
•
6 Replies

What's your view on Lorenzo's Oil?

Do you have an opinion on Lorenzo's Oil? Do you think it works? Or, do you think it is a complete...
•
21 Replies

I have 3 sons who have just been diagnosed with ALD

The youngest 2 will be having bone marrow transplants. Was wondering what peoples experiences were....
littlelegs2 profile image
littlelegs2
•
17 Replies

New in fight with ALD

Hello everyone, My name is Ramona from Romania,my son was diagnosed recently with X-ALD ,he has 8...
MonaStoica profile image
MonaStoica
•
5 Replies

Related Posts

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.