Son (21) is almost 10yrs post BMT for ALD, Addison's Disease. He has been offered his Covid vaccination. He is worried. Anyone had theirs yet? Any advice please?
Vaccination : Son (21) is almost 10yrs... - Leukodystrophy Su...
Leukodystrophy Support
195 posts•
Vaccination
Written by
Hopeforthefuture
To view profiles and participate in discussions please or .
Read more about...
The ability to reply to this post has been turned off.
5 Replies
•
From what I know, Alex TLC have recently emailed about doing a webinar tomorrow at 8pm on the vaccines if he would like to watch that.
Thank u x
Is the webinar accessible after the fact
If you search "vaccination" on the Antony Nolan website, it comes up with some useful information which says that it is fine to have a vaccination after BMT unless you are within six months of transplant. None of the vaccines are "live" which are the sort that are not recommended. Also the Addison's Self Help Group (ADSHG) website has information about vaccination and Addison's. There is no need to increase hydrocortisone dosage unless you feel unwell afterwards as some people have minor side effects, e.g. sore arm, slight temperature.I listened to the webinar and was reassured that vaccination is not a problem with ALD/AMN. On that basis, my son who had a transplant in 2009 had his vaccination yesterday. We concluded that having protection from severe Covid when you have Addison's was important and that nothing was telling us that vaccination was unsafe. Sue.
The ability to reply to this post has been turned off.
Not what you're looking for?
You may also like...
drugs for 8 years old boy suffering ALD
Hello!
My son a year ago was diagnosed with ALD. The disease progressed rapidly, now he already is...
I hate to ask but i need to know…how long after the disease sets in do male children have before they lose the battle with this disease?
My son was diagnosed in January and is already showing signs of organ failure and it is only June....
Difference between AMN and ALD
My 32 year old son just passed on June 27th . He was diagnosed at 25 with ALD. Everyone told me it...
Genetic testing for under 16s
Is it hard to get genetic testing for your son or daughter? It is suggested it is difficult for...
I have 3 sons who have just been diagnosed with ALD
The youngest 2 will be having bone marrow transplants. Was wondering what peoples experiences were....
What's your view on Lorenzo's Oil?