For patients AND carers: Have you/your loved one received mental health support to help you cope with ALD/AMN?
AlexTLC5 months ago
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Were your family offered genetic counselling when you/your loved one were diagnosed with ALD/AMN?
AlexTLC8 months ago
If you have any symptoms of ALD or AMN, has this affected your employment?
AlexTLC9 months ago
As a carer of someone with ALD/AMN, has your loved one's condition had an effect on your own mental health?
What ALD Life services do you access to support you/your family with ALD?
AlexTLC10 months ago
How long did it take from when you first saw your primary doctor about you or your son's condition to when you saw a specialist?
AlexTLC5 years ago
How long did it take for a diagnosis of ALD or AMN to be made?
matt9 years ago
Do you have access to hydrotherapy?
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