Posts - Leukodystrophy Support | HealthUnlocked

Leukodystrophy Support

195 posts

All posts for February 2022

Alex TLC Impact Survey

Please complete our Impact Survey 2022! Your feedback really matters to us and w...
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Talking Point: How do you like to communicate and network with other affected individuals?

We'd be interested in finding out from YOU how you like to communicate and netwo...
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Rare Disease Day 2022...how to get involved!

It is Rare Disease Day on Monday 28th February. This year’s theme is #LightUpFor...
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Externally-Led Patient-Focused Drug Development meeting (EL-PFDD)

We are thrilled to announce that we will be hosting an Externally-Led Patient-Fo...
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Future Beneficiary Events...What do you want to see offered?

We are currently in the process of planning our beneficiary events for 2022. We ...
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