support groups: my boyfriend has CLL. he... - Leukaemia Support

Leukaemia Support

1,295 members808 posts

support groups

suzyredsox profile image
4 Replies

my boyfriend has CLL. he was diagnosed a year ago. we would like to join a support group but there are only two meeting this year in our area

Written by
suzyredsox profile image
suzyredsox
To view profiles and participate in discussions please or .
4 Replies

Hi Suzy, welcome to the forum. Are you able to share where you live? We may well be able to sign post you to a service.

Oleboyredw-uk profile image
Oleboyredw-uk

HiSuzy,

Have you also looked at CLLSA meetings. There are a number around the country each year. Perhaps one is close to you.

The CLLSA also have a community on healthunlocked. You could check that out also.

If you post your approx area I’ll see if I can find out any other local options.

BTW, you said he’s 57 and been diagnosed for a year. Coincidence, I was diagnosed at 56 also. Read my profile for more detail.

best, rob

lankisterguy profile image
lankisterguy

Hi suzyredsox,

Does the screen name indicate you live in Boston area?

The CLL Society has a list of support groups here:

cllsociety.org/newly-formin...

Here is the link to Central Mass group:

cllsociety.org/event/centra...

And a online virtual support group:

virtualsupportgroup.questio...

Let us know how else we can help.

Also, since you mentioned CLL and may be in the USA, you may want to also follow this international CLL group in addition to the Leukaemia Care group which is oriented towards all NHLs in the UK.

healthunlocked.com/cllsupport

Len

2003UK profile image
2003UK

Hi, you have already had some useful replies above. If you are in the UK the Leukaemia Care Charity have a list of support groups in the UK. Another idea that I find very supportive is to join the Leukaemia Care Charity virtual support group and then it would not matter where you live in the world. Both are sign posted on the Leukaemia Care Charity front web page. Take care both of you.

Not what you're looking for?

You may also like...

NICE Approves Acalabrutinib (Calquence) for specified groups of CLL patients in England

@[43534] and @jm954 represented patients at a recent NICE appraisal of Acalabrutinib and NICE has...
Jm954 profile image

New diagnosis of ALL for my son 25 ..so scared

Scared mother of a 25 year old son recently diagnosed with ALL totally out of the blue 3 weeks ago
Cyprusfan profile image

Persistent infections and always unwell

Hi I have been struggling with persistent infections for 3 months and am due for my hospital...
Hopeful123 profile image

Nervous journey

On way to see Consultant to get results for my 25 year old son who has ALL. Hoping MRD will be...
Cyprusfan profile image

Are they faking this serious illness?

I need answers. I have a relative who was diagnosed with HCL 7 months ago.. But unfortunately...

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.