We know you want more research on hepatitis that can change your treatment options and therefore your life. Now, you can help us to help you by participating in the HepPRN patient registry. The registry is a survey that you take online and you don’t have to do it all in one sitting.
Start here (you can start it and come back as many times as you need to finish it):
hepatitisfoundation.org/RES...
The Hepatitis Registry Network (HepPRN) securely collects health and lifestyle information regarding the lived experiences of those affected by or infected with viral hepatitis, by using a highly protected and private survey. It is a very interactive survey that gives you feedback as you go along.
The result is that the data will be available to medical researchers selected by Hepatitis Foundation International, but allowed to see the de-identified data by you. Researchers will be able to contact you to participate in research and clinical trials if you select that option.
The #HepPRN registry was created by HFI International with input from our patient community. Please set aside an hour or so to do the survey. You do not have to do it all at once.
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