Stem Cell Study

Recently I have been considered for a stem cell treatment in California. Unfortunately they asked me to send them my original trauma reports, including any scans I have. I had this info, but about fifteen years ago during a move I lost everything, except for my rehab reports. These discuss my injury fairly well, but do not include any brain scans. They are also written in a non complicated way, so probably omit an awful lot of technical info they would need. I tried contacting the original trauma center, but not only are records destroyed after 5 years, but the trauma center has since changed ownership. I had been in constant contact wt the person in charge of the stem cell study, that is until I revealed to them that I had no original trauma reports. I am guessing that this officially excludes me from the study, but I wish that they at least had the nerve to admit to me that I was no longer a possible candidate.

7 Replies

  • Stem cell treatment is definitely the way forward for brain injury ; as you know Gr it's been highly successful in all recent trials. So I'm really sorry that circumstances prevent you from participating, and can only imagine how disappointed you're feeling.

    Regards Cat x

  • That's a terrible shame as stem cells are definitely hold a lot of promise based on studies done so far. I'm not aware of any stem cell trials here in the UK apart a recent trial for stroke survivors aimed at improving mobility, so as a TBI survivor, that would exclude me. These studies have very strict criteria and to qualify you'd normally have to be medication-free which is unrealistic for many.

  • I wonder if this trial also requires you to be off medication? I only take a low dose of both a muscle relaxer, and an antidepressant, but I'm not sure if I could go off them for an extended amount of time.

  • Clinical trials are usually advertised on the internet. I think the most popular site for US-based clinical trials is If you could find the study there you'd be able to see the inclusion and exclusion criteria. If a study is testing a new drug they wouldn't want you be currently medicated as that would interfere with any conclusions.

  • Hello again grrr33mind, Jules here

    Would up to date scans backed with a private consult work ?

    I had to have one scan private at the Nuffield hospital, costly thou, think the scan was about £500. Maybe the GP would allow it ?


  • I don't think they want to see my current brain scans, but instead want to see my initial brain scans from 20 years ago. I think I'll just send them my rehab reports, and hope for the best. The circumstances of my injury, are quite unusual, but considering most of my neuron death wasn't from force, but rather hypoxia, perhaps they might make an exception. Honestly what could they learn from 20 year old scans, that they couldn't learn from present day ones, that they might choose to conduct. Hoping for the best ...

  • If you don't have the actual scan, they'd probably accept a scan report. I'm guessing you had a CT scan and seeing as it was a hypoxic injury there probably wouldn't have been any blood clots and visible tissue damage so they wouldn't be any more informed about your injury. Were the hospital records digitised? Perhaps that is your only hope. It makes me think, I don't have a copy of the CT scans of my injury, it isn't hospital policy to give them to patients, however I do have radiologist reports of the CT scans as these were released by the hospital following a request by my solicitor.

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