Stop meds with receptors still present?!

[Stacey5]

I've been on meds for the past 17 months. Like all of you know it's one hell of a ride.

My receptors started at 9.5, here in Spain 0.1 is the perfect range. (I don't know how that is world wide but I'm assuming it's kinda similar) its been going down during the 17 months. But now the last 3 months. It stayed on 0.2.

My opinion is that as long as the receptors/antibodies are still present I should be keeping my meds. But my doctor says it can be dormant. My question is this possible?

I had an endro in Portugal she said continue your treatment you're almost there and the doc here says.. Quit its such a low dose it won't effect the thyroid anymore and it's dormant. So in my confusion what do I do?! 😔

I started to reduce the meds 6 weeks ago to half a pil every other day. And now I'm without since 3 days.. It just doesn't feel right or it might just be me. Please hope anyone can help me to clarify this situation I'm in.

Thank you and have a wonderful day ❤️

[pennyannie]

Hey there Stacey

I'm sorry but your post hasn't gone onto the main page of Thyroid uk and forum members will have missed your question.

Some people stay on a very low dose of the AT for very many years, others stop and wait and see what happens, and considering your antibodies are low, this sounds like a good time to try and see what happens - as I read Graves does tend to wax and wane.

Graves is an autoimmune disease and as such it is for life, and understand that it is stress and anxiety driven so I hope you worked on your lifestyle and diet and have an understanding of this poorly understood and badly treated AI disease.

I found the Elaine Moore Graves Disease Foundation website a very useful adjunct to the Thyroid UK forum and can I suggest, in future, you post on the Thyroid UK forum where you will find many more forum members to speak with.

I'm with Graves but had RAI ablation back in 2005 and deeply regret this treatment but at the time I knew no better. I was well on the AT medication but told I was to have RAI the following year as the AT drug was too dangerous to stay on long term.