Gorlin Syndrome Group

I am now trying vismogeib. But have to travel from Leeds to Manchester for treatment.

I amnot on benefits but on a modest wage.

Can I get financial help from ant charties. I am applying to Macmillon but if on medication for life this will not cover costs.

2 Replies

Hi Sharon. Macmillan may be your best bet for financial assistance. Not sure what your circumstances are but NHS has a Low Income Support Scheme for help with healthcare costs. It is worth checking out at nhs.uk/NHSEngland/Healthcos... It may be worth checking about travel costs with the consultant treating you too.

Good luck on the vismo and hope you are successful obtaining funds.


Hi im on vismodegib but I get it from st james in leeds


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