I’m just not in a good place today. I keep thinking of my disc cupping of 0.8 and 0.7 it’s not normal m. I’m stressing it’s the high end and can only think I will go blind quickly. Sorry for just being so down
Not good today: I’m just not in a good place... - Glaucoma UK
Not good today
94 Replies
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Oh sweetie! I don’t even know what disc cupping means. Now young lady have you been googling again? 😉. I know sometimes it is helpful but remember that on the internet you will only read extreme cases. Remember that we are all on our own journey & each and every one of us is different. Have you rung the Glaucoma UK helpline to ask them about it? Also the type of Glaucoma you have (open-angle?) is the “best” one to have, it’s the most treatable and the one you are least likely to go blind with as far as I’m aware. I’m no expert by any means but I have read all the articles on the Glaucoma UK website and watched the webinars- they are really helpful. Is there anything you feel you can do to take your mind off it? Watch a “feel-good” film or have a bubble bath (a glass of wine & chocolate always helps!) Take care & hang in there we are all here for you & understand where you coming from. 😊 x
in reply to Wales99
Thankyou so much for such a lovely message back to me. You and Witchie346 have been so amazing to me. Yes I’ve been googling again so bad of me. I’ve just not been good it’s consumed this weekend. Wine and chocolate sounds good. I’ve a day off work tomorrow so I’ve had a 3 day weekend but been moping about Saturday and Sunday so need to stop. Monday is a new day so I’ll be productive. Thankyou again and I hope you’ve had a lovely weekend xx
Wales99 in reply to
Bless you. I too have had days/weekends like that I’m sure a lot of people on here have. I remember taking a long weekend off work and spending the whole time in such a state of anxiety I didn’t eat or sleep. Totally wasted my time off 🤦♀️ On the other hand I think work helps take my mind off it. Try to have a nice relaxing day. Xx
in reply to Wales99
That’s exactly what I done. I don’t work weekends but also booked today off and I ruined the weekend by doing nothing but stressing with my eyes. I’m going to try and be more positive today. Your right though work does help x
Redshoes15 in reply to
Hi JulieB, so sorry to hear you are feeling low. There is no shame in admitting that and good that you can share it with us. We all know how you feel and have been there many times. Glaucoma is such a worry but there is lots they can do and you are still young enough to have a long way to go yet. Take care xxxx
You don't need to say sorry for being down Julie, we all have good, indifferent,bad and really bad days and sadly today's a bad day for you. I have no idea about cupping at all so I can't say anything about that but I can empathise with your worry and stress. We are all dealing with a complete unknown and have to just try and go from one check up to another with absolutely no idea what our eye pressure is doing and how our vision has or hasn't changed and human nature makes us fear the worst. I won't tell you not to worry as you will anyway unfortunately.
You see your consultant next month and all going well your pressure will be lower and any other tests he may carry out will be fine. You were diagnosed early which is a huge positive, your field test shows no vision loss which is also a huge positive, you have thick cornea which give false high pressure readings and you are receiving treatment. All of this goes in your favour.
I do think if you got your pressure checked today and it was lower you would feel a bit better as not knowing is so hard to cope with. You need to know your pressure is stable and what your consultant's treatment plan is for you to maybe give you some peace of mind.
I just try to do everything I can to help my eyes, I exercise, drink plenty of water to stay hydrated , take flax seed oil capsules to promote eye health , take my drops on time, don't miss any optician or eye clinic appointments and just hope it's enough.
You were only diagnosed this year and it's a major shock to be told out of the blue you have glaucoma and it takes time to reconcile with this fact. You will get there and you have me and Wales 99 and others on here to help you in the meantime x
in reply to
Thankyou it’s so lovely to hear from you you and Wales99 are always here I so appreciate it. I hope you have had a lovely weekend I’m going to have a productive day tomorrow or try at least. Thankyou again. Chat soon take care xx
in reply to
Yes try and keep busy tomorrow and keep your mind occupied. Thank you I've had a lovely wknd, my partner was off so we pottered around in garden, had a lovely meal from wee deli in next village and played on beach with our dog. Nothing exciting but I enjoyed it anyway. Just in from a walk in rain x
I lost my gran in 1983, at that time I was already diagnosed and using drops, not registered blind until 2017, a total of 34 years, you've got a long way to go.............
in reply to Jennymary
Thankyou Jennymary. Your so lovely with your comments x
Oh bless you! Please, please talk to Glaucoma U.K. they are absolutely amazing and really do have the time to talk. Believe me in the last couple of weeks I have had meltdowns due to anxiety. However after talking to Glaucoma U.K. I feel there is definitely someone there who understands and can help me through. So definitely share your concerns, let the anxiety out, it won’t disappear however hopefully it will give you more control. This community is amazing, so supportive, like what has already been said we are all on very different journeys however there is so much understanding here which isn’t always easy to find with family and friends who are not suffers. Take care, be kind to yourself and talk to the hospital or/and Glaucoma U.K. and keep in touch! My second COVID vac today! Then operation next week! x
in reply to Sunshine8888
Thankyou so much for being there again with your kind message. It really does help. I’ve just been really down about it all over the weekend. I’ve got hospital in June. It’s always the not knowing isn’t it. I had my 2nd Covid jab on Saturday. Good luck with your op I’m sure I will chat to you again before that. Thankyou for taking the time with me again. Xx
Sunshine8888 in reply to
Always here for you! And remember you don’t have to wait until June to talk to someone pick up the phone today, it’s good to share, let out your worries, take a deep breath and then do something you enjoy! I’m so lucky, I have three beautiful grandchildren and one voice message, one smile is my therapy, otherwise it’s a walk in the woods, gardening or eating chocolate 🤣
in reply to Sunshine8888
Thankyou I will. Xx. I do have an Amazing partner even though I’m not sure he gets it all the time he’s still fantastic and two lovely sons and my sons girlfriend has a little girl I call her my honoury granddaughter bless her. I will concentrate on all of the positive. Thankyou again x
in reply to
I agree with Sunshine it is good to share and let your worries out, bottling them up just isn't healthy. The fact you vocalise your fears is a positive not a negative.
I'm not sure anyone who isn't going through this themselves does really get it, no matter how hard they try.
My friend writes a gratitude diary every evening and puts 5 things she is grateful for in it, I don't do that but I do try to focus on all the great things in my life and not just my rubbish eyes.
Do something nice for yourself today Julie and we are all here for you x
in reply to
Thankyou you are all so kind x
in reply to Sunshine8888
Walking and chocolate for me too, gardening not so much although I do like looking at all the flowers once my partner has planted them. X
Sunshine8888 in reply to
Ha ha unfortunately I don’t have anyone to plant them! However I haven’t got anyone who says ‘eating more chocolate’ so for me there are good points too 🤣well off for my vaccination now the joys of a Monday. Take care x
in reply to Sunshine8888
Mine goes one better and steals my chocolate 😱!!!! Good luck with jab x
Sunshine8888 in reply to
Grounds for divorce 🤣
in reply to Sunshine8888
Good luck with vaccine x
Sunshine8888 in reply to
All done and back home! Where’s the chocolate 🤣just booked optician appointment for six weeks after op. My eyes are changing so rapidly I could do with new glasses every three months let alone once a year. Being cheeky I asked if there were any schemes which in reducing cost for those of us who need to change glasses frequently, I knew what the answer would be -no- no harm in asking though 😊
in reply to Sunshine8888
Excellent now copious amounts of chocolate for you. You are very organised with booking your appt that's something I should do as it's nearly 12 weeks since my op. Definitely no harm in asking and shame it was a no as glasses are so expensive, my lenses alone are nearly £300 yikes !!! n they are the cheapest ones 😱Have a lazy afternoon n take care x
Sunshine8888 in reply to
My lenses are too! You would really think there should be some assistance this day and age. Think we should start a campaign 🤣Done a bit of gardening now off to my log cabin to listen to a couple of podcasts and no doubt a bit of chocolate 🤣
in reply to Sunshine8888
I think there should be when it's a chronic eye disease such as glaucoma, definitely a campaign needed 🕶️. Hope you had a lovely afternoon indulging in chocolate and podcasts. I'm just back from a 3 hour hike through the forest, loads and loads of bluebells it was gorgeous. I'm now going to eat pizza 😂 x
Sunshine8888 in reply to
Oh wow bet that was absolutely beautiful! And you have certainly earned a very large pizza 🍕 enjoy x
in reply to Sunshine8888
Huge pizza and I had the cheek to have it with salad to convince myself my meal was actually healthy 😋 x
in reply to Sunshine8888
Glad the vaccine went ok. Glasses are so expensive aren’t they. Do you have to wear them all the time. Enjoy the rest of the day and hopefully some chocolate xx
Only natural to have good and bad days as you are still newly diagnosed . I have days like that too .
You have open angle which is the most common one and slow progressing and has more treatment options than the narrow angle one , so you might only ever need drops and you have already started those .
You have had an early diagnosis , again thats a plus too.so lots of things going in your favour, take comfort from that xx
With cupping everyone is different , some people can have larger cups naturally and no optic nerve damage , so it’s another factor that forms part of diagnosis alongside the other tests .
I was informed in letter of my results after my initial screening that discs ok .
When I had my gonioscopy on Fri, in that printout I saw c/d 0.6 ... he didn’t comment on that so not sure if that’s my disc size or the ratio.
specsavers.co.uk/eye-health....
We are all here for one another , sending hugs x
in reply to Lovemy2woofs
Hi Thankyou for replying to my message. It is the disc cupping that is freaking out even though he never mentioned it to me it was in the letter he sent to my GP and I got sent a copy of that to. It’s my fault I google and I have to stop. Keep telling myself to stop it. I just had a real meltdown this weekend. I don’t work weekends so I kind of ruined it by feeling so down. I also had today off as well so I’ve been more productive done loads of housework watched some rubbish tv and played some music it all helped. I’m like you I don’t understand the c/ d ratio but I then try and look into it to much. Hope your not getting to wet walking those lovely dogs of yours it’s been awful here it what we usually call sunny Bournemouth. Anyway I will chat again soon. Take care and Thankyou again for the message x
Lovemy2woofs in reply to
I don’t think it helps when they don’t explain , of course we are going to google .The one I saw on Fri was not in favour of it, I could tell by his demeanour , yet he told me very little 🙄
I think it’s bad that he didn’t inform of the symptoms to look out for if I have a angle closure attack , luckily I had googled .
When he was typing out on computer I said to him so going into a dimly lit room like a cinema or theatre can bring on attack I have read , he said yes that can happen, and carried on typing !
So I said what do I do if I have one ?
Go to A&E he replied .
So now living my life watching what I do, Re dimly lit rooms ..not going to theatre or cinema until I have had iridotomy and it has been successful and not looking forward to my diabetic retinopathy screening in Oct as those drops can bring on an attack .
I also read that 50% of blindness globally is related to angle closure , so of course having this type does scare me .
When I get to go for my iridotomy , hoping I don’t have him, and if someone else hoping I can ask a few more questions .
I think like me , you are wanting answers as you feel more in control knowing the facts .
It’s hard not to google , but sure for both of us it will lessen .
I joined a Fb group too, but OMG I find it more depressing as more bad than good .
Having a productive day helps, don’t let this win , right now yours is stable and newly diagnosed .
Take care and always here to chat x
I know exactly what you mean. One of the consultants (not mine) said there’s no point googling with the type of Glaucoma you have. I mentioned Glaucoma UK and he said well that’s no help there won’t be anything on there relevant to you. So basically I have nowhere to turn. I’m on my own. Ha ha! Yes Facebook groups can be a bit of a nightmare. I’ve joined the Glaucoma UK one & it’s not too bad. I think if you’ve googled the signs for an acute attack you know what to look for so at least you are on the ball. As always Glaucoma UK helpline is a great reassurance. Take care. 😊
Thank you , I think some are arrogant .I thought the one I saw would be pleased I showed an interest , but no lol
He wanted people in and out I feel , he really looked like he didn’t want to be doing the job that day , well that was my impression.
Take care too x
Hi Julie, I know what you mean by bad days.. I went to my consultant in Monaco and 5 days before I went to Cannes (half way) to see how my pressure was as I am not using alphagan only monoprost. I had my pressure taken it was 16 (down 1) and (up 2) to 19... She was fine with that result.Then I go to Monaco to see my usual doctor 5 days later and it is 23 and 19 and she wanted to put me back on alphagan... Then she measured it again (this was 1 hour later) and it was 17 and 19. However she did discuss that it can fluctuate... thank god she took it again. It makes you think are we getting correct readings, especially important when you are given drugs for life.
My eyes have been paining me alot and I worry I am risking increasing my pressure as I was the one who mentioned coming off alphagan. I just take non preservative eye drops for dry eye when this happens as the doctor said that monoprost will give you dry eye and pain i have been on it for 2.5 years.
I totally empathise with you, you cannot help but worry its normal...
take care valfrance
in reply to valfrance
Thankyou for your reply that’s really sweet of you. I was told pressure can change throughout the day and that’s normal but I still stress. I hope your doing ok as well. Nice to chat to people on here x
Hi. I've seen lots of suggestions to speak to glaucoma UK and I agree with them. Do call. Or the RNIB. They'll also be able to give you the telephone number for the ECLO ( eye clinic liaison officer ) at your hospital. I've found them very helpful people to talk to. All the best
Good morning, I'm not sure what cupping is, and can't offer any more advice than what has already been said, but wish you the very best of luck, we are all thinking of you, and here for you. Its not easy, but stay strong, these consultants are so busy, they don't have the time to explain things to you, which is unfortunate, but you are in the right hands.
in reply to floki7
Hi Thankyou for your message. May I ask how long you’ve had glaucoma and which type. Do you drive and work.
floki7 in reply to
Hi had Glaucoma (open angle ) from about 2005, and worked driving a lorry until 2016 when i retired, have a little part time caretaking job in our village hall, and still drive, but not for the past few weeks since my op. Have to re apply for my license in August when i am 70, so that may be the end, but my consultants have never said i should not drive before now, my eyesight was not that bad before the op anyway, so will have to wait and see
in reply to floki7
Hi Floki, how are you today? I hope your eyes feeling a bit better now your stitches should be starting to dissolve. If you have consultant tomorrow all the best and let us know how you get on. Positive news only 🤞
floki7 in reply to
Hi Witchie, good to hear from you, yes eye is better today, stitches are almost gone by the feel of it, still irritates a little, and aches now and then. Saw the consultant last week, but don't see him again till a week tomorrow. Eye is still blurred by the drops, and loose a bit of balance if I turn too quick or look up from doing something if standing, but i do have bouts of vertigo, so that may be something to do with it, but so far so good.How are you, keeping well i hope
regards
Doug
in reply to floki7
That sounds like it's going in the right direction and the fact you don't see consultant until next week surely means he's happy with your progress. Blurred vision does seem to be the norm after a trab but hopefully it won't be too long till it clears up.Whrn your stitches dissolve it does make a difference, I did find my eye tiring very easily for a good few weeks when I was reading but then one day that went too. I lose my balance too when looking up so I know how that is, just be extra careful . I am great , just in from my second drowning of the day, 😱, just have to love Scottish weather, only one more after dinner walk to go with my dog and fingers crossed it will stay dry.
Take care ,Wid .
floki7 in reply to
Yes does seem to be going in the right direction so far so, so good ! I was born in the Borders, we moved down here to the South of England when i was around 2/3 years of age, but have always considered Scotland home, not been back for around 25 years though, must do that, before my feet are pointing skyward lol ! Hope it stays dry for you later, regards.
in reply to floki7
I have had the some lovely holidays down in the Borders, I was born in Stirling but we moved to the west when I was 7 and I've never strayed from this side of the country ever since. You definitely need to treat your wife and wee dog to a holiday up here again.
We love the Lake District, Northumberland and Yorkshire, they are our favourite holidaying spots south of border.
It's lovely sunshine now, so no wellies required for our after dinner walk 🙂
floki7 in reply to
Yes it is lovely around the Borders, I was born in Peebles, and had family in Selkirk, and Innerleithan. Pleased it stayed dry for you !
in reply to floki7
We stayed in a hotel in Peebles a couple of years ago beside the golf course, it was lovely and the town was great for mooching around. My partner is a keen mountain biker so he goes to Innerleithen all the time or did before covid.
floki7 in reply to
Yes really nice around there, I was born in the infirmary opposite the putting green alongside the Tweed, now a old folks home i believe, small world !
in reply to floki7
I spoke to my partner and he knew exactly where you were talking about ☺️
floki7 in reply to
Think i need to go back, while I can, my cousin owns a cottage along Biggiesknowle which he rents out, where the garden runs down to Eddlestone water,, So will have to try and find him, but not spoken to him for around 10 years, and knowing him he will probably charge me double ! lol
My cupping is 0.9. I understand where you are coming from. Just take each day as it comes. Take your drops, do procedures as recommended by your GS. There is help and advice at every stage. Be reassured by that.
in reply to Crazycatlady27
It’s so scary. Do they mention your cupping much to you or did they say it may be normal has some people have large cups. They seem to concentrate more on the visual field but I’m a terrible googler so I always look for the bad. How long have you had glaucoma if it’s ok to ask. I was diagnosed in December last year I’m 53. Do you still drive and work. Sorry don’t mean to be nosey x
in reply to
How are you feeling today Julie after your productive day yesterday ? I hope you are feeling a bit better than you were at weekend. Until you mentioned cupping I had absolutely no idea about it at all. I know I have a thin optic nerve in my right eye, which I could have guessed as it's my worst eye and I know there's a huge black area in my visual fields,1/4 in fact where I have lost vision. I am no longer a Googler, I used to do it obsessively prior to seeing my consultant but now I don't really. Take care x
in reply to
I’m much better today had a good day yesterday and looking for a another good one today. I’m trying hard not to google. How’s you hope your well xx
in reply to
That's positive , it is really just one day at time . Googling is fine if it's for definitions, as a lot of medical terms or medications I have no idea what they are but anything else to do with your eyes No.!!!!! 😱A little knowledge is a dangerous thing ,as the saying goes and it definitely is.I'm getting ready to go for a picnic as it's lovely and sunny and my partner has a rest day. The town we are going to has a park and beach for our dog and really nice esplanade, so I'm looking forward to it. Plus I'm not having to make picnic we are buying it from the deli 😊. X
in reply to
Ahh Thankyou it’s down to yourself and others that I’m being more positive and staying away from google. Ooh a picnic sounds lovely especially one from a deli. Have a wonderful day you deserve it you are a lovely person and lovely to me. Hope your dog enjoys it to. What’s your dogs name xx
in reply to
Aww thank you that's so kind of you to say. I remember how awful I felt initially ,I just cried all the time, even walking down the road there would be tears pouring down my face and so finding this forum has made a big difference to me too . I personally prefer to be kind as it actually takes very little, I can however also be a real moo if necessary tho !!! Our picnic was lovely and gorgeous cakes too, it did start to pour down after a couple of hours but we actually didn't really care.My dog is called Loopy Lu and she made lots of friends and was running crazy around the park with them. Now we are all exhausted . X
Wales99 in reply to
It’s my turn today. Not having a good couple of days. Just feeling fed up & wishing I didn’t have Glaucoma & I could have my sight back. That’s not going to happen so I need to just focus on what I have got rather than what I haven’t. I am hopeful for my operation. I just want it to get here - feel like it’s taking forever. I’m pleased that you are feeling more positive- I hope I haven’t brought you down again! 😂.
in reply to Wales99
Och Wales I think the nearer you get to your op date the more uncertain and anxious you feel about your eyes,glaucoma, the actual op and probably every single darn thing. It's not always easy to focus on what you have instead of what you haven't and waiting is just plain painful. You have have had to wait for months and I think that makes it worse, I had 2 weeks notice which for me was much better.I sometimes wish I didn't have glaucoma and had all my sight too and I look at my left eye which has red upper and lower lids because of ganfort and get upset about it. All that's natural and human and as long as it doesn't take over it's ok to feel like that.
You just need your op over and done with now. You will get there I'm sure. Lots of hugs x
in reply to Wales99
Oh bless you. You havnt got me down we are here for each other through good and bad. I’m sorry your feeling down. I’m sure it’s because your ops getting nearer and the waiting must seem like forever. I’m sure everything will be fine. Always here to chat like you are for me. Xxx
Wales99 in reply to
Aww thank you. Yes I think the op looming is both scary & also I’m impatient to get it over with! I feel better today. I think the tablets I’m on for Glaucoma are making me feel down. By the end of the day when I’ve taken all of them they make me feel absolutely drained & that’s when I feel down but I think it’s fatigue more than anything which is one of the side effects. Still- I’ve only got to be on them until the op. Take care & thanks for your support. X
in reply to Wales99
Oh bless you. Will chat soon I’m at work now. I’m glad your feeling a bit better today . Xx
I agree not to google medical issues, but i do try to find out my ailments on the NHS website.
Julie, I have read a lot of your notes with Wales99 and Witchie346 etc and just wanted to add my info as I am soon to be 77 years old , have had Open Angle Glaucoma for apx 30 years now and try to know as much about it as I can. First year I had laser twice, didn't work to lower pressure, stayed on drops nighttime only for apx 15 years never changed, Then new Dr's and they all want to change drops/try more laser surgery etc. Any eye drops you take should only be PRESERVATIVE FREE! Any surgery you have should be with second opinion and consultation, and in my case when the SLT laser did not work for me , I found out it is because it does not work well on Glaucoma patients who have been on drops for years and had other lasers. Now I avoid Dr's who want to rush me into any surgery procedure and a lot of them are pushing Stents, Valves etc, Micro Stints/ Shunts etc. I don't want to do a procedure that can't be undone or will leave scar tissue that will cause damage. I don't always trust the IOP readings in the office, so I got my own machine I can use at home if I am worried , it is Diaton, and there are many on the market. I found that my pressure went up slightly after my Cataract surgery in both eyes, then leveled off, just avoid any steroid treatments. Right now my pressure is the same high it has been for 30 years hovering between 17 and 20 and I feel the reports of my tests are more important than the pressure reading that come on regular 6 months or less checkups. I have a Retina Doctor that I trust for advice over the other Glaucoma Doctors I have had. He is smart and open minded and tells me the truth and he says to avoid surgery if I can as long as I can and stay with the drops and pills that are working for me right now. You really have to study and do research on Glaucoma it is a never ending condition for you the rest of your life until they find a "cure" for it instead of "treating" it. I am holding out for STEM CELL someday! Eyesong in Texas
in reply to eyesong
Thankyou so much for your lovely reply I appreciate it. I’m hoping I really do only need drops I’m guessing your in the USA we do do things slightly different over here obviously with having the nhs. I did go private last time though. My pressures were 20 and 24. My drops are preservite free and I take Fixapost once in the morning I use to be on Lantanprost once in the evening but Fixapost is a combination drop so that’s all I take . My next appointment is in June and won’t know anymore till then. Have you lost much vision. Do you still drive. 30 years and you seem to be doing ok. I have heard laser works better if you havnt been on drops for years but don’t know weather to ask for that or keep to drops if they are working because drops don’t cause damage like surgery if it doesn’t work am I correct
Wow, I learn a new eye drop all the time! Never heard of Fixapost PF but will keep it in mind next time my Dr. wants to change RX. I had RX lens put in when I had Cataract surgery, one eye is distant, one eye is close up (monovision) and no vision pblms and I do drive (had a problem with drivers testing machine due to monovision but got Dr. letter). Your pressure is about same as mine and it all depends on how your tests show your progression with any damage and how your Dr. feels you are doing. I will do what I can to avoid surgery and I am on Cosopt PF 2 times a day, Zioptan PF at bedtime and I take a pill Methazolamide 50mg 2 times a day sometimes 3 when I can remember. I pay for all my RX's as none are covered by Ins. so I shop around for best price. Glaucoma controls me everyday, I know I am gradually loosing vision as my FOV test show small damage in center of right eye that has been there from the start and as long as test stay close to the same I feel I am doing okay and my vision does not change. (my Retina Dr. can tell me in advance of any change he knows me so well, recently he asked if I could see up close or needed to use "readers" and I said no, but it wasn't long until I noticed , hey maybe some over the counter readers would be nice now! If you have a good relationship with your Checkup Doctors you can learn a lot about your care and any progression of loss of sight. I read everything I can find and all the latest Scientific research projects here in the US and else where when I can find out. Keep me up to date on your care and I wish you and all " Glaucoma Club for Life" all the best, Eyesong in TX.
in reply to eyesong
Hi Eyesong my drop Fixapost is a combination drop. It’s Lantanprost and Timodol. I have to put it in at 7 every morning. I’m hoping this one lowers the pressure a bit more. My doctor said having a combination drop saves patients doing drops throughout the day. My first visual field was very good apparently that was in December last year when I was diagnosed havnt had one since. Next appointment in June very anxious I’ve got cupping of 0.7 and 0.8 but don’t understand that and have thick corneas which apparently is good. Thankyou again for messaging. I will keep in touch
in reply to
Hi Julie hope this weekend has been a better one for you than last week ? X
in reply to
Morning yes I’ve had a much better weekend Thankyou. How’s yours been xx
in reply to
I'm glad to hear your weekend has been good , mine has been fine just wet, cold and windy and therefore I've not done much. Yesterday was ok weather wise but I had to wait in for a delivery for most of afternoon,typical !!!!. Just in from a dog walk and that's the rain on again ☔🌧️ x
in reply to
Hi sorry for late reply. I was busy this weekend we started to decorate W lounge and also was my sons birthday yesterday so we went for lunch. I’m like you just wish the rain would stop. I’m back to work tomorrow after 4 days off. Chat soon Thankyou for messaging take care xx
in reply to
You've had a busy weekend and perfect time to decorate when the weather was so awful. It's lovely now that you can actually go out to celebrate a birthday, instead of having a takeaway. My son's birthday is in August and although he's going to be 27 he still acts like 7 on his birthday( at X Mas too ) . Enjoy the rest of your last day off and finally here there is sunshine 🌞 x
in reply to
😂😂 I know what you mean about sons acting like that. My two are both the same. 😂😂. Hopefully the weather will change for the better soon. I’m currently in the hairdressers having some me time. Xx
in reply to
That's funny yours are the same, I think boys never really grow up but actually I don't mind . You definitely deserve some me time enjoy being pampered x
Your right boys never grow up. 😂 Always want their mums to. I enjoyed my pamper Thankyou. I think I know need to start doing more with my days instead of focusing on just my eyes. Don’t get me wrong I’m still petrified about them but I’m not doing my mental health any good at all. It’s thanks to you and others who are helping me through especially you so Thankyou so much x
Wales99 in reply to
Good idea! I’ve started doing the same. I try to stay off this forum as well if I’m feeling anxious. Although it’s brilliant & supportive - as I’ve said before all consultants are different and we are all on different journeys. If I’m feeling anxious I come on here & read that someone else’s consultant has done this or that & then I start worrying that my consultant hasn’t done that & it just spirals. Especially as I’m due my op next week- I don’t want to read anything bad about it! Glad you’re feeling better though. X
in reply to Wales99
I totally agree the forum is great but sometimes it’s just worrying. I’m really going to try focusing on myself now. Even though I’ve got hospital appointment June the 15th. I’m sure your op will be fine. I’ll chat soon. Just want to say Thankyou for your support xx
Wales99 in reply to
Thank you! And yours too and Hidden . Good luck with your appointment. 😊 xx
in reply to Wales99
I agree the last thing you need to be reading just now is anything negative so close to your op. It is great to have the support of others who are dealing with glaucoma but comparisons don't help especially if you are feeling down.
You and Julie are definitely a big help to me x
in reply to
Glad you enjoyed your pamper, it definitely does you good. My son definitely still wants his mum and long may it last ♥️.
I think it's natural to be so scared and unable to focus on anything other than your eyes initially and then you realise you can't let it take over your life, you are still you and you aren't defined by this horrible eye disease. I've said before we all get there eventually it just takes time, we all find our own way of coping in the end.
You help me too as we are going this together just at different stages, so thank you x
in reply to
I know what you mean by sons wanting mums and we wouldn’t have it any other way. I’m glad I’ve helped you as well because I do feel like I whinge a bit about gluacoma and must get on peoples nerves on here. I’m concentrating on my mental health at the mo and also my diet because when I was low the other week I comfort eat and I put on 3lb not good I had previously lost 1st 4lb so have to get back on it. Xx
in reply to
You don't whinge, you have natural fears and instead of bottling them up inside you vocalise them. Mental health is definitely every bit as important as physical health and one definitely impacts on the other.It is really positive you are concentrating on your mental wellness. You did really well on your diet previously, so don't beat yourself up after putting a few pounds back on, you were low at the time and now you can eat more healthily and get back to where you were.
I think we are all too critical of ourselves and shouldn't be as Wales said "We are warriors" She made me smile with that.
You do help me 😃 x
in reply to
Thankyou for lovely reply. Yes definitely mental health takes a battering. I’m definitely going to get back to the healthy eating. Loved what Wales said it made me smile. We are in this together like you said all at different stages but there for each other. Hope you’ve got some lovely sunshine today it’s beautiful here right now xx
in reply to
I'm a vegetarian and have been since I was 17, I generally have a healthy diet but I do love chocolate, it's my downfall. I'm busy eating orange smarties buttons as I type this ,😱.I'm just in from a long walk and yes at last we have sunshine, it makes everything seem better 🌞. X
in reply to
Ooh we all like a bit of chocolate those orange smarties are lovely. Enjoy. Definitely the sunshine makes us all feel good x
in reply to
Nothing better than sitting reading in the sunshine 🌄 x
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