THE EMBATTLED VETERAN: GLAUCOMA OVER A LIFETIME - Glaucoma UK

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THE EMBATTLED VETERAN: GLAUCOMA OVER A LIFETIME

lupusinflight profile image
5 Replies

I read a question from a newly diagnosed glaucoma patient, and began typing out a response. I wanted to be friendly and in fellowship. But the person had said, 'Just diagnosed and scared'. How then could I write any of the things I wanted to say, when my story has brought me to my knees in despair a thousand times?

Dear Friend, I was diagnosed with glaucoma when I was 19. And it has been pretty awful for me because I was already so myopic as a child. I'm 42 now, like you, and my eyes are extremely embattled soldiers... two trabeculectomies, a Molteno implant, a Baerveldt shunt, scarred, with optic nerve damage and swathes of visual loss. I wish I could say hopeful and encouraging things to you, but even as I write this, I am in the shadowlands. I had a vitreous detachment seven weeks ago and my right eye, my only functioning eye, is now a plethora of black floating seaweed. Migraines and scintillating scotomas take the stage often, and uveitis paints my cornea red from time to time.

My father is blind and so I live with the knowledge that blindness is a thing that can be lived with, even as I keep my sword and shield up to protect my sight and light to the last.

So you see, Friend, beyond being grateful that I can still see, however compromised my vision is, I can only wish you luck and faith! If you aren't myopic, and if the cards aren't stacked the way they were for me, I'm sure you will do just fine with a good ophthalmic team looking after you. Keep the faith... keep it for me.

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lupusinflight
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5 Replies
Lynne-H profile image
Lynne-H

What a lovely brave person you are - I wish you well xx

lupusinflight profile image
lupusinflight in reply to Lynne-H

Thank you for reading and writing to me Lynne. I wish you well too xx

Windflower profile image
Windflower

What a terrible and traumatic time you have had and still have to face. I can feel your despair and helplessness but at the same time, I see your strength of character, your acceptance of the things that you can’t change, and also your compassion. You are a truly amazing person, and it is an honour to know you. xxxxx

lupusinflight profile image
lupusinflight in reply to Windflower

What a lovely message, thank you Windflower - it’s managing both things at once that makes us human, I suppose? xxx

That is one of the most inspiring things I have read x

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