1 week after trial ended: Hi all... - Lung Cancer Support

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1 week after trial ended

RwHayes profile image
RwHayesCommunity Superhero
13 Replies

Hi all,

Can you believe today 1 week after I finished my low dose, prophylactic , radiation to my brain my hair has all started coming out again! I mean by the handfuls again.I thought I had dodged that bullet when I finished the trial and it was still holding on, but I guess it just hadn't had enough time. Every thing else is going ok no other side effects other than feeling run down. Thanks for all your support!!!!!!!!

Sincerely,

RW

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RwHayes profile image
RwHayes
Community Superhero
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13 Replies
anrean profile image
anrean

Hi I know this is so much easier said than done because I've lived through it, but it is just hair and it will grow back. I went to the American Cancer Society and got two beautiful wigs. Also try Paula's Wigs - they are very nice. The one biggie thing I did that worked nicely is I got a "cap" to go under the wig - it stopped the itching.

Praying all goes well for you!!

Steph60 profile image
Steph60

I had that happen the 3rd week after my 1st chemo treatment. It was very traumatic- had my hair cut short, since I thought I was going to loose it all. Turns out it happened 3 more times always the 3rd week after chemo. Hope that is the worst outcome that you have as a result of being part of the trial.

PegD profile image
PegD

It is a lesson in vanity isn't it? Had mine buzzed 2 weeks after chemo and the trauma of having it long and coming out in clumps has been avoided. It is still coming out but the the strands are very short and less mess. I Just had infusion #2 (Cyramza/Taxotere) and expect to be totally hair free in 3 weeks. Been wearing my wig when deemed that hair is a must. Glad to hear you are feeling well!

RwHayes profile image
RwHayesCommunity Superhero in reply to PegD

Yea I lost mine with chemo but I really wasn't expecting it with this low dose radiation .

Thanks ,

RW

lyzrockgirl1 profile image
lyzrockgirl1

Great news I meant for little other side effects....not hair loss. RW what type of lung cancer do you have. My father started Whole Brain Radiation this week. He has a couple tiny tiny mets. He is in remissions on the other areas of his body. I know he is tired.

RwHayes profile image
RwHayesCommunity Superhero in reply to lyzrockgirl1

Mine is small cell

lyzrockgirl1 profile image
lyzrockgirl1 in reply to RwHayes

What trial are you on? Have you gotten WBRT?

RwHayes profile image
RwHayesCommunity Superhero in reply to lyzrockgirl1

Prophylactic low dose brain radiation

JeanE41 profile image
JeanE41

Glad to hear you've had no bad side effects. Bald is in and no time needed to style it. Hoping you rebound quickly.

FtB_Peggy profile image
FtB_Peggy

Oh RW, sorry you have to go through that. Please try to rest and concentrate on fighting this thing. You are worth it!

scifiknitter profile image
scifiknitterBlogger

Geesh! I guess you are going to have to go with the current trendy bald look for guys, RW. What do you think - should you get a tattoo and ear piercing to complete the look?

Anita

RwHayes profile image
RwHayesCommunity Superhero in reply to scifiknitter

Hi Anita,

Lol, yep I think I would make a good looking pirate anyway. Or mr clean. Lol.

Thanks for being here,

RW

Denzie profile image
DenzieModeratorVolunteer

The mental picture of you as Me Clean brings a smile. Now picture Mr Clean wearing his super hero cape and you have RW.

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