Improvement and then disaster

[TrampyJDWench]

Hey everyone!

I hate having a moan because it can bring others down but I need somewhere I can voice what is going on at the moment because I'm struggling.

I have fibromyalgia and joint hypermobility syndrome but have been very lucky the past few months in that I have been able to exercise a few times a week with hardly any symptoms, I feel very fortunate because this time 6 months ago I was struggling to get out of bed unaided and using a stick to walk. It would seem exercise is having a positive effect and a lovely lady named Rachel at the Link Centre has sorted me a condition friendly gym programme. The thing I can't get rid of is brain fog, it's effecting my studies, I lose whole hours and struggle to even speak sometimes. I had a seizure in March, the second in three years and only the second one that I know of. I visited a neurologist a couple of weeks ago who dropped the bombshell that I had a brain hemorrhage at birth and have scarring on my brain as well as missing vascular mass which was found on a previous mri. We had a chat and I told him about the periods of confusion and other things I thought were brain fog. I am now being tested for epilepsy and non epilepsy seizure disorder. The information I have received has been overwhelming. I know this isn't something Foggy's deal with but was wondering if anyone could offer some advice?

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Don't give up. Research, talk to other sufferers. It's ok to moan. Who the he'll wouldn't. You are human, not superhuman. Be gentle with yourself. Hugs and lots of luck.