Functional Neurological Disorder - FND Hope
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NAC

NAC

Been looking into pharmanac as my son used to have it in ny as a try by his psychiatrist... it helped his OCD and his depression.. just managed to find a U.K. Distributor so we've got 4 packs now!! Been looking at various studies and the except says helps with progressive myoclonic epilepsy.... oh and there reports of it helping Alzheimer's memory issues.... I know a few on here are more medically aware than me so I wondered.... there's loads of web stuff with info on but it seems Stanford in USA has done extensive research into it.... wondered if it might help us with the myoclonic jolts/ seizures and memory issues.... maybe something that might help.... anyone else heard of it???

Sending hugs to a better day 🤗🤗🤗🤗🤗🤗🤗🤗

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Haven't heard of it but am amazed at how much you fit into a day.

I'm glad you managed to get this medicstion and hope it helps. Did you use it for your older son before?

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Yes it worked really well then moving country was a struggle to get it imported!!

There's a lot of studies how it helps with anxiety in autism and bipolar, schizophrenia , there's a long list..... I'm going to get my son on it but as I'm on fluoxetine so need to speak to to gp or prof Edwards as the pharmanac increases the brains ability to get chemicals flowing freely therefore I might need to drop the fluoxetine ... plus the pharmanac is £16.95 a box! And with import taxes etc cost me £81 for 4 boxes!!

I've even cleaned my back door! Walked the dog done some washing ... now off to get kids! I've slept for the last 3days 10-2.30 then kids xxxx

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I'm so happy for you. It's always great to hear when someone gets something going there way.

Also that you got it when you are moving house, and doing a gazillion things.

It's funny how things work out.

Just the littlest positive wind can spur you on.

I'm a positive person even when In the worst circumstances. I can have feeling sorry for myself days but not my best quality.

I was once trying to leave a job I was being bullied in but the manger backed up the bullier. Being evicted from my apartment because I wouldn't pay dodgy landlord extra rent he had been ripping me off for 2 years. I had been spending hours every night after shifts applying for jobs. After 16 months I got an interview and got the job. I handed in my notice but boss was so 'cut off his nose to spite his face' anyone who was leaving he would tell them to go that day.

I gave notice even saying I have 2 weeks until I start new job and I know you are short staffed so would stay on if he wanted but he was so mean he told me to leave 2 hours into shift leaving 1 person and a manager who was freaking. I waited as he paid out in cash then got 3 weeks pay 3 weeks holiday and had 2 weeks to work out where to move to.

Landlord took me! To court as said he was evicting me. Got there said I was leaving anyway as he was overcharging me and was already gone. He was so greedy that he then said I want her bond too. The court told him he had to do a second application if he wanted that. It was $1500 and held by a government department. He took me to court again for this, this is a guy in his 50's who owns over a 1000 properties handed down by his father so he had no mortgages he was just collecting lots and lots of money.

We went to court and he is very presentable and I was very nervous, never been taken to court. The magistrate saw straight through him. I'd made a big spreadsheet of all my payments. He spent 3 hours ripping this guy apart until I got awarded $4000 back and just in time for xmas. He was doing something illegal with the paperwork to get extra money and had been for 25 years. I was really tempted to put a big ad in the paper saying if you rent from this billionaire he probably owes you money but I'm not that mean.

But was literally being bullied in a job I hated, and being evicted then got new job and apartment at same time and amazing flat mate who became a best friend and I had a bit of spending money 😊

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Oh gosh .... I hate crap landlords... why don't they get the crap tenants?? I'm glad you fought it and got the $4,000... like you I'm a glass half full girl and most days just think "at least it's not raining or at least I'm not running from bombs dropping or from terror attacks". It's currently 19' here very warm! Picking up my two boys then the two kids I watch 2 days a week! Played hide and seek with them for an hr yesterday whilst wearing a pair of virtual reality cardboard glasses... so much fun as everything is blurry and plus side I didn't fall

Over or stub my toe 🤗🤗

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That sounds like fun. We have had a good week with sun but cloudy today. Have had a very happy outdoor cat 🐱

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I actually just started on it two nights ago.

It has had a dramatic impact on my brain fog experience as far as I can tell, and my husband notices that I don't ask him what day it is as much (1ce today versus 8-12 times a day prior).

I haven't observed any improvements in my tics (myoclonic jerks), seizures and such, but I'm grateful for the changes to my mental state.

Right now, I get it as an over the counter supplement. 750mg, once a day.

Over and above FND, I have BPD, PTSD and DID. BPD affects working memory by itself, and FND basically destroyed mine. So far, NAC gives me a very significant mood lift (I've been used to feeling suicidal throughout the day, every day, since FND set in) and seems to improve my comprehension. I find that I'm not as cranky as I have been since FND set in (by "cranky" I mean little traumatic triggers sending me into a violent fit), and hope that continues to improve.

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That's fantastic! I found it also helps brain fog and mood

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I'm at 9 days now. It's still helping quite a lot.

This morning, my husband said that he feels like I'm as intellectually active as I was last year at this time, which is about 5 weeks post on-set. Back then, I was having *so* many symptoms and they were all *very* intense, but I was intellectually on-line. I was forcing myself to work and even working two other jobs still. I had a lot of psychological setbacks because of FND during that time, largely due to some severely negative social interactions with people at my work and old relations, which I think compounded the drain on my already-flagging working memory. I still cannot sit behind a computer for long, especially if there's a lot on the screen, but I can think more clearly and am able to put more complex ideas together again. Reading is still out. Planning and goal setting are out for me right now due to psychological stresses they cause. That's okay. I was figuratively sick of planning and crisis management all of the time, and now I'm literally sick *from* it.

This weekend, I noticed a *significant* drop in fear and rise in self-confidence. I've struggled with self-confidence for a long time, but fear like I feel it now is new, since FND. It compounded my paranoid delusions. It's funny to me now, but there was one day when I was at the mall and spilled coffee on the floor. I flew to a store nearby and bought a disguise. Seriously. And then when I saw the security guards, I panicked and hid in the bathroom. I was terrified of being in trouble for spilling coffee. I'm 46! I weigh 250 lbs and have black belt. I used to be the *source* of fear. Well, after a week on NAC, I was back at the mall, wheeling around in my wheelchair without any noticeable fear.

The self-confidence is important. It's going to be valuable this week when I meet with doctors. I usually kow-tow to whatever they say, but I feel a clarity and certainty of my own position that I'm *willing* to defend it verbally. That's *very* new for me. I've never been able to even *suggest* that I could do that throughout my life!

Pain is unchanged, but it's *clear* to me know. I can separate the physical pain from the emotional pain it drags up. Here's an example. I usually look like one of those attention-getting signs that folks put up for grand openings and such: those stick figures that bump and bounds and flail around. I look like that now thanks to FND. Well, I've known since the onset of FND that one of my problems is a lot of severe and painful pinched nerves, especially in my neck, lower back and right scapula. When I immobilize my right arm, my symptoms stop, because the stabbing pain under my right shoulder blade and in my neck stops. I can focus on building techniques like that again, because I'm not crushed by the depression that comes with thinking that I'll never do anything worthwhile again. (And yet I still don't know why I keep being told that it's psychological. Whatever. Doctors are little more than average-looking spokesmodels for the pharmaceutical industry these days.)

NAC also helps my cravings, of all sorts. Food. Alcohol. I've lost a teensy bit of weight, but I'm also not beating myself up about it, and also developing a sense of satiety. I've struggled with that, too. I honestly don't know what "hungry" or "full" feel like, but I'm getting a sense of it now, and haven't cleared my plate in several days. That's a good thing (not clearing my plate!). I'm an alcoholic, and the cravings get really bad with FND which I'm seizing and foggy and angry and tired and I just want to get knocked out. Those cravings have also subsided.

There have been no other changes to my routine or diet lately, so this is all thanks to NAC.

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Thanks for the info. Worth a look. My seizures can be agony but Consultant Neurologist and GP have said no to any pain relief. Say I’ll just end up with an addiction to the pain relief medicine. It’s just all so Catch 22 - I’ve already got an unwanted addiction: painful seizures. I’m a tough cookie so asking for something is an indicator of just how sodding painful they can be. I said that I wouldn’t be in charge of the medication, my husband would (I’m paralysed during the seizures) and so it would be someone else’s call whether to give me it or not and I wouldn’t have access to it. So it wouldn’t be me sitting there merrily shooting up whenever. But no budging them. Hey ho guess I gotta find some reserve of “”manning up”. 😣

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