Frustrated!! 😫

[rosannabg]

Hi

I was diagnosed with FND a few years ago although until last year i was always treated as an attention seeker/time waster. My first symptoms involved paralysis from the waist down & i was given minimal input so it took a very long time to get back to walking. Since then I've had several relapses which involved paralysis down my left side which seem to have been caused by status migraines, I did have physio input for these episodes. Then this last relapse last week seems to be the worst so far,again im sure its been triggered by status migraine but i know have paralysis below the waist in my left arm. Im still fighting this migraine but im getting so frustrated by my lack of progress, everytime the physio comes i seem to go back to square 1. Im really struggling with relying on other people to do everything for me, i just want to get back to normal!

[Lorinda1]

Hi. I was diagnosed w FND 4 mos ago. I don’t have paralysis but full body shaking does affect my walking and I have other disabling symptoms. What a contrast from normal life! Anyway, the glamour for the the ppl care of me has definitely worn off. My adult kids have to take time off work to help me and my husband does pretty much everything else. I also struggle w that. I feel so guilty for being a burden.

[Seamer37 in reply to Lorinda1]

Hi.How do you come to terms with allowing people to do everything.

I'm a year into my journey and my marriage is just about over as he just wants me to sit in the corner and not move incase I get hurt. I'm a trained nurse and have 2 small children. Life is unbearable. How do you cope xx

[Lorinda1 in reply to Seamer37]

Hi Seamer. What has helped me a lot not relying too much on one particular person. My husband does get the brunt of it but I try to spread ppl giving me rides,etc between my 2 adult kids and friends. I hate inconveniencing ppl but it’s really not fair for my son, for example, to do more than his share. My husband is a minimizer so if anything I need more help from him.

I also try to remember that I would help my friends and family were the tables reversed.

I think coming to terms with needing so much help is a process. I’m seeing a psychologist to help me learn coping skills.

Hope you are doing a bit better.