fnd: struggling with fnd as not being told much... - FND Action

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estellelouise profile image
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struggling with fnd as not being told much about it

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estellelouise
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Yeah , I can totally relate .

I had never heard anything about it when I was told that my symptoms pointed to it .I was shocked when I saw it did not have a NHS page NICE says nothing

I hope these help and that you make sense of it.it was explained to me as a hardware software problem , like the computer is not damaged but the programming won’t work .

1.neurosymptoms.org( I don’t like this site but Dr suggested it ).

2 Reading the medical journals( I found they helped the most as I discovered what doctors think about it /see it as .)

3.FND was known as a conversion disorder Until 2013 so you can try looking up things about that it is also known as a psychosomatic disorder

However I would say that the medical journal stuff is quite abrasive and some are quite harsh So approach with caution

estellelouise profile image
estellelouise in reply to PrincesspreRaphaelit

thanks

goatsnchickenz profile image
goatsnchickenz

Hi estellelouise, I have FND. I was diagnosed with conversion disorder several years ago by a psychiatrist. Then again with FND last year by a neurologist. I have found that although the two names refer to the same condition, FND info is much more information and tends to explain it more in terms of being a neurological/psychiatric hybrid than a straight DSM-5 mental health disorder. I'm interested to know if others have had a similar experience. FNDhope.org has some really great information. I have figured out many coping skills but my condition seems to get better and worse without any rhyme or reason.