Sickness benefit : I was diagnosed with fnd and... - FND Action

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Sickness benefit

Jessdonna profile image
6 Replies

I was diagnosed with fnd and chronic fatigue. I am on a waiting list for a chronic fatigue clinic. Today i received a call from esa my money will stop because at my assessment i could walk up 2 steps. As anyone been treated the same?

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Jessdonna profile image
Jessdonna
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6 Replies
Bailey09 profile image
Bailey09

Yes they stopped my money to had no money at all , just càuse I could walk but I couldn't walk with having crutches

Jessdonna profile image
Jessdonna in reply toBailey09

I am so sorry how do you cope? I do not know what i can do.

Norma1956 profile image
Norma1956

I have got neads and after a year i just got pip because i have to have somebody with me all the time and cannot go out on my own but esa womt give me nothing crazy

Mygeordiebud profile image
Mygeordiebud

Hi

You can appeal ESA decision suggest you make appointment to go and see citizen advice they can help with appealing.

You could also apply for PiP with regards walking it’s walking a max of

10 metres to get enhanced mobility but if you can walk more than 10 metres you could still get standard part. Care component depends on what you have trouble doing like getting dressed making a meal etc again you standard and enhanced.

You can look online for help filling form out or again CAB can help.

Mark H

Mygeordiebud profile image
Mygeordiebud

gov.uk/government/publicati...

Mandatory appeal link above you can take it all the way to a tribunal.

You need to write down how FND affects you from fatigue, vertigo, paralysis of legs arms, tremors etc.

Get a letter from your specialist, GP stating how FND affects you. Always answer questions as your worst day. Don’t give up take it all the way.

Hope this helps you

I have FND and also lower spinal which I’ve had operations on and some other medical problems and I get Income related ESA plus PiP.

If you live near Bristol you could get a referral to the Rosa Burden Center which specialise in FND plus Parkinson’s and other neurological disorders.

Mark H...

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