How do you cope with your MPN so you know you're... - Fight MPN

Fight MPN

810 members • 260 posts

tclementi8 years ago17 Voters

I educate myself so I feel more in control.

I talk to others online through Facebook or other websites

I connect with an MPN specialist so I can get the best care

I seek advice or help from organizations like the MPN Research Foundation, Patient Power, etc

I remind myself that an MPN is becoming a chronic disease as research and treatment progresses

I attend in-person support group or person-to-person connection meetings

Other (I'll explain more by leaving a comment)

2 Replies

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Jplsuper8 years ago

I put my trust in my Doctor

katiewalsh8 years ago

I rely heavily on HealthUnlocked for info & support. It's an amazing group.