How does your GP react to your concerns about is... - Fight MPN

Fight MPN

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How does your GP react to your concerns about issues that could be MPN-related? Tick any boxes that may apply & feel free to add further

tclementi•8 years ago•8 Voters

My GP is aware of my MPN and considers the possibility that a current issue may be related

My GP believes I may be well informed about my MPN and is receptive to my opinion

I feel I am sufficiently knowledgeable about my own MPN condition

I feel it necessary to remind my GP that I have an MPN whenever I see them

Other (i'll leave a comment explaining)

I feel I am not very knowledgeable about my MPN condition

When I present with an issue, my GP is often dismissive of MPN being possibly connected

My GP doesn't believe I may be well informed about my MPN and isn't receptive to my opinion

6 Replies

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johoho8 years ago

My gp, dismisses anything that could be to do with PV & tells me my consultant should deal with it.

tclementi• in reply tojohoho8 years ago

Interesting! It sounds like they should be working together, instead of just one doctor looking at it.

Deedge8 years ago

I have a new GP that admittedly hasn't had any experience with an MPN.

tclementi• in reply toDeedge8 years ago

Thanks for sharing your experience. How do you feel about the GP not knowing about MPNs? Are you seeing a MPN specialist too or someone who knows more about them?

Deedge• in reply totclementi8 years ago

I am seeing a local hemo/onc that hasn't had any experience with MF but is very thorough & I can talk to him because he's been following my case for 3 years. I also go to a larger cancer center in a nearby city to see this doctor's boss, who has had experience with MPNs. He is dismissive of the symptoms I am experiencing, which are many. I have an appt with my local hemo/oncologist tomorrow & I'm going to tell him I'm going to another cancer center in Rochester, NY for a second opinion. I was diagnosed with MF (thrombocytopenia, Hypofibrinogenemia) with enlarged spleen 4 months ago. I'm not on anything for the MF but the 35+ lb weight loss & anemia in 3 months seems significant-of a change.....The local hemo/oncologist ordered an anti emetic to treat n/v, but otherwise I am on no meds yet. I'm not trying to "rush" things I've read that many Dr's are being proactive & prescribing meds early, after diagnosis. I just want symptom relief.

tclementi• in reply toDeedge8 years ago

It sounds like you are on the right track! Keep us posted

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