Benepali injection

[Maggie69]

Just started on these injections but I am sooo sooo tired is this one of the side effects and if so does it wear off please x

[Carolsos]

Hello Maggie 69, I have unrelenting fatigue since starting Benepali and also just started with a sore mouth on the roof, have you? I have so far had 2 injections how many have you had? I am hoping this fatigue does wear off soon. Take care

[Maggie69 in reply to Carolsos]

Sorry just replying o had my 5th on Friday but I’m also on prednisone and reducing by 5mgs per week are you on this xx

[Carolsos in reply to Maggie69]

I am on my 5 th one tomorrow but not on steroids as the consultant would not let me take them, even though I asked too. I think the Benepali is working as am not in as much pain and the fatigue is lessoning. My hands are still very stiff and swollen in the morning. How you doing? Take care 🙂

[BonesY2K in reply to Maggie69]

5mg per week of prednisolone is a lot to reduce by! This could easily link to extreme fatigue- your body has to catch up. Talk to rheumatoid team. I have reduced by max of 2.5mg per fortnight and below 5mg took 1mg per month!

I also take Benepali- Now 4 months in and feeling so much more able. My fatigue also linked to long covid over about 7 months also much reduced.

My advice is ALWAYS try to talk to Biologics nurse specialist if possible during medication issues.

Good luck xx

[FamilyHistorian in reply to BonesY2K]

you did well to reduce your pred by that amount. Once I was down to 10 mg I was reducing by .5mg alternate days for 2 weeks then each day for 4 weeks then back to .5mg alt days. I eventually had to stop reducing once I got to 3.5 mg I couldn’t go any further. Currently reviewing my drugs and returning my MTX back up to original levels.