Hi first post here.
My wife and I have two adopted boys (well one adopted from 7 months, now 11, and his half brother, 4, who's been with us a year and going through the adoption process) , both we believe with FASD. The eldest has a recent diagnosis and the youngest ticks most of the boxes and has an appointment with the paediatrician shortly. We also have a foster son aged 11 in a wheelchair with cerebral palsy.
Family life is , as I'm sure it is for all of us, rather full - some of the therapists describe it as a 'higher level of parenting', whatever that means. One of the things that makes it work is the support we get through the fostering agency and also our foster son's DLA that we are allowed to use flexibly to help with pressure points for us all.
Recently one of our therapists suggested that we ought to be able to get at least the lower level of DLA for at least our eldest, and possibly even the youngest as well. Does anyone have experience in claiming DLA for FASD children? What are the magic elements you need to mention in the claim form? It was rather obvious for our foster son (higher rate DLA), but with FASD I hadn't even thought about it. As I guess many of us know, being able to pay for little bits of support here and there make all the difference.
Thanks for any advice