Has anyone experienced severe memory loss related to epilepsy. I developed severe epilepsy about 7 years ago - age 56. I was having 3/4 major seizures per week as well as many more minor daily incidents. It took until 2 years ago to be brought under virtually complete control but I am left with very severe memory loss of a huge part of my life.
It is my long-term memory of events and places that is mainly affected. I still remember most people, language, learning etc but I have forgotten my life with my parents, my son's childhood, holidays, places I have visited, events big and small, films, books and much, much more that is difficult to define. My short-term memory is also nothing like as good as it should be.
If I were to be asked, I would honestly say that, given a choice, I would keep the seizures and have my memory back!!! I feel as if I don't really know who I am anymore - as if I have lost a big part of myself - if that makes sense.
Has anyone experienced anything similar.