Hi - 1st time posting here, but just after some advice. My 18yr daughter has generalised epilepsy diagnosed at 12 with TCs and absences. Been on numerous drugs plus the diet and nothing works. Absences are up to 100 a day and a TC can be anything from 8 weeks to 2 weeks apart. She is under the John Radcliffe. Before going off to uni next year, I just want to ensure that we're not missing a trick i.e. is this really as good as it's going to be or is somewhere like the National Epilepsy Centre in Chalfont better geared up to deal? People also keep mentioning the Brain Hospital in Bristol. I don't want to persuade her to go on a wild goose chase especially as she's busy enough with her studies and i know there isn't a miracle cure, but I just don't know what to do. I'd like to get her more stable before going off but I may be chasing a pipe dream.
Drug Resistant Epilepsy - Best place ... - Epilepsy Research UK
Epilepsy Research UK
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