Hi everyone, I'm very new to this and only got diagnosed a couple of days ago! (This is going to be very long and I apologise!) I had a car accident a couple of years ago, and injured my back. Since then, I had had a few unexplained injuries in my sleep resulting in trips to the hospital with many smashed faces! We didn't know what was happening, but kind of put it down to knocking myself out whilst being tired and just not remembering (I always ended up with concussion), or me just falling out of bed! Around two years ago, I had a weird episode in my sleep that resulted in paramedics being called, which I do not remember. The paramedic said that it wasn't actually a fit, and all my obs were normal. Ignored it since then, but a more serious injury made me start recording myself in my sleep with a spy cam app. This showed me having what looked like a fit (horrid to watch myself doing that!), so I eventually went to the drs, who referred me to the neurologist saying I had nocturnal epilepsy. Saw the neurologist on Tuesday who has told me that I had a major epileptic seizure, and that what I have thought for 8 years were migraines, turns out to be a form of epilepsy in my waking hours! The only connection is that I lose control of my eyes and sometimes my head, which both twitch down to my right side. Apparently this is not a migraine, and is connected to my epilepsy. This has resulted in me losing my car, HGV and LGV licences, and being put on medication! Has anyone else had anything similar regarding the strange day time things connected to nocturnal?! Sorry for the length of this!
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