I'm 17 and just got identified with epilep... - Epilepsy Action

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I'm 17 and just got identified with epilepsy.

lemuri profile image
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I am at a loss. I had an EEG a couple weeks ago because I had 2 notable 2 minute seizures where I lost consciousness and had spasms over the last 3 years. according to my EEG it is highly likely I can seize again and have been. How do I identify when I've seized? I'm supposed to keep a log of any times that could be instances of seizures.. but I can't personally remember anything. does anyone have any advice on if there's types I can remember or how to find out if I have had others? I want to be on medication so I am not in danger because I also have POTS syndrome so I am more likely to lose consciousness overall.

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lemuri
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lemuri profile image
lemuri

if it helps, my neurologist said that I had very high electricity on the left side of my brain.

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EpilepsyAction1PartnerEpilepsy Action

Hi Lemuri

Thank you for your post. Many people are not aware of having a seizure unless someone witnesses it. The only other way is if you have symptoms after a seizure. We explain these symptoms on our webpage tonic- clonic and focal seizures.

epilepsy.org.uk/info/seizur...

epilepsy.org.uk/info/seizur...

You can download a diary from our website or send me a private message with your name and address and I will send on in the post to you.

epilepsy.org.uk/living/seiz...

I hope you hear from others in this community soon.

If you don’t, as well as managing the HealthUnlocked community, Epilepsy Action has other ways for you to contact others. These are:

Facebook facebook.com/epilepsyaction

Twitter twitter.com/epilepsyaction

Talk and Support epilepsy.org.uk/talk-and-su...

If you wish to talk to our helpline team and you live in the UK, please do phone our freephone helpline 0808 800 5050.

Our helpline is open Monday to Friday 8.30am until 5.00pm, and Saturday 10.00am until 4.00pm.

Regards

Diane

Helpline Team

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