Junctional zone

[Niitahh]

Has anyone ever been diagnosed with adenomyosis because your junctional zone was more than 12mm

Please someone say yes lol I feel as tho I’m going crazy xx

[Lofty1589]

Hi! If the junctional zone is more then 11mm, it is an indicator of Adenomyosis. The only firm way of diagnosing for sure is a hysterectomy. I’ve just turned 21 and was diagnosed a year ago. It’s a difficult one because even GPs don’t understand what Adeno is, and have a limited knowledge of Endo.

I’m currently in induced menopause to try and help but it isn’t working for me. Which means I’m out of options because a hysterectomy is out of the question.

Try researching it a bit. It may take some time since it isn’t massively well known. There are others of us out there! X

[Marie2377 in reply to Lofty1589]

Hi just being nosey but was it Zoladex they gave you?

[Lofty1589 in reply to Marie2377]

Not a problem at all. I was on Decapeptyl for 7 months and then Prostap for 6. Neither worked for me and I’m currently refusing Zoladex on various grounds

[Marie2377 in reply to Lofty1589]

Thank you for responding. Good to see the names of the other drugs.

[Lofty1589 in reply to Marie2377]

They’re all essentially the same drug. Some women get on better with one, some women don’t get along with any. Decapeptyl and Prostap are injections into the bun/tummy. Zoladex is into the tummy but it’s harsher (from what I understand) because it’s an implant

[AnnieAnnie]

Hi there! I've not heard of the term junctional zone but last year following a couple of scans, I was told that from those scans, they were indicative that I have adenomyosis (obviously the only real way to diagnose is hysterectomy but I haven't been able to fall pregnant after 9 years of trying, 3 ivfs and lots of other procedures so that's not an option). And this is now on my medical records as something I suffer from.

I'm on a wait list for surgery, a lap and a hysteroscopy to see if I also have endo. After suffering since I was 12, I'm now 36 and finally being taken seriously about my pain.