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Endometriosis New Zealand

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Stressed, young, confused

Crystalee profile image
4 Replies

Hello to everyone,

I am a 22 year old girl who has just joined this forum to seek information, advice and reassurance. 3 weeks ago i had sudden onset pain in my lower abdomen that i would describe as 10/10 pain. I was taken to hospital in which they thought it was my appendix so they operated and removed my appendix. After surgery I was told that it was a burst cyst that had bleed 100mls of free blood. They noted it down as a "chocolate cyst" these terms are very new to me. Just last week i had to get a check up which involved a pelvic ultrasound, I just got my results back today and it stated i have a 36mm right ovarian cyst that they said is an endometrionma. I have never been told i have endometriosis so i am very confused about this. My uterus and left ovary are unremarkable meaning neutral. it also states my endometrium is smooth and regular measuring 6mm. I really want to have kids in the future i do not want this type of cyst to stop it from happening. I am very scared, can someone please share some information about my results.

thank you in advance

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Crystalee profile image
Crystalee
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PixiePie2110 profile image
PixiePie2110

Hey Crystalee,

I know that the inital diagnosis of endometriosis is all very scary, I was first diagnosed when I was 18 and had been living with it since I was 15 and had no idea what was going on til then. I have 3 friends who have varying degrees of endometriosis and they've all managed to have multiple kids - even when one of them was told she would never be able to have them :)

Best advice on this matter was given to me by my specalist whislt I was in auckland. He said "you don't know til you try" . Also the average couple when trying for a baby can normally take up to 2 years.

Have you had your laposcropy to remove the endo yet? After each lap I've had they always say what the chances are of you having kids in the future :)

You're still really young so I wouldn't worry too much about it, just focus on getting a good treatment plan in place for you, that way you can hopefully improve your chances of conceiving in the future :)

I hope this helps & you get the right help from the doctors :)

Leacon profile image
Leacon

Hello!

I'm sorry to hear what you're going through. I'm 20 and felt a ton of pain for a while till I couldn't take it and eventually went to the ER to find that I had an ovarian cyst that burst as well. After that I started seeing a doc regularly and he found a fibroid tumor and after a few month saw its been growing. I had a diagnostic laparoscopy where he also saw I have endometriosis..

I'm trying to learn the different treatments as well since my doctor is very reserved and doesn't discuss much with me however I do know endometriosis is very common and can be controlled pretty well with the treatment that works for you. I've been on a birth control where I skip periods so that's given me a bit a pain relief. But I am about to start a hormone suppressant injection/implant called zoladex that he says will shrink my endometriosis as well as my fibroid. And that my fertility chances will be better when I want kids later on.

There's probably more options out there Im learning as well.. best wishes though!

Crystalee profile image
Crystalee in reply to Leacon

Thank you for your reply is a fibroid tumor cancerous?

Leacon profile image
Leacon in reply to Crystalee

No a fibroid is benign.. my doctor is thinking about giving me an MRI though and I don't know why