Thoughts and ideas since starting thi... - Encephalitis Society

Encephalitis Society

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Thoughts and ideas since starting this trial

RED1224 profile image
10 Replies

After 3 days I have started to communicate with other users/members and communities which, I think might be relavent or useful for my understanding of encephalitis as well as getting the best from this experiance. It has given me something to think about in regards to; communication, gaining knowledge/understanding and learning from others.

I have written down some post ideas and some questions I would like to ask, I hope to put a few up each day and see what comes back.

Has anyone watch the film adaptation "Brain on Fire by Susannah Cahalan?" if you did what did you think?

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RED1224 profile image
RED1224
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10 Replies

I agree that I have benefited from this in the same way as you! But I haven't yet seen the film "Brain on Fire."

RED1224 profile image
RED1224 in reply to

It is worth a watch if nothing else it bring to life some of the things encephalitis survivors experience.

in reply to RED1224

I totally agree with you. 😊

in reply to RED1224

Can I get it on youtube ? I do follow a lot on therr but its been a while since I did so.

RED1224 profile image
RED1224 in reply to

I bought it on Amazon it was not that expensive watched it a few times and lent it to family members and friends.

RED1224 profile image
RED1224 in reply to

I just had a look you can watch full film on YouTube.

in reply to RED1224

Thanks very much RED1224 😁I will watch full film on YouTube.

Paula-38 profile image
Paula-38 in reply to RED1224

I did watch the full film last evening on YouTube and I feel so sorry for poor Susannah... My goodness she was in a very bad way.. Awh bless her. ☺ It also must have been a nightmare for all her family. She was in a very bad way. I just hope that she gets all the help she requires and that of her family too.

RED1224 profile image
RED1224 in reply to Paula-38

It is a great visual aid for family and friends to have a glimpse into been diagnosed with Encephalitis. Susannah is one of the main ambassadors for the Encephalitis Society. Doing very well becoming a successful writer, receiving awards for her book "brain on fire". She has posted a few videos up on the Encephalitis Society website. She is such an inspiration and has recently bought out her latest book.

Paula-38 profile image
Paula-38 in reply to RED1224

Wow that's so amazing that Susannah has come so far... she is a star!

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