HSV 1

[Recnik]

Me again.The brother was finally admitted to the university clinic. As I already said, I suspect that after the primary HSV1, he now has some autoimmune encephalitis as a secondary one.

What diagnostic measures should I insist on, what should they do in terms of procedures, analysis?

[kitnkaboodle]

Lumbar puncture with full infectious and autoimmune panels, MRI with and without contrast, continuous EEG, etc. at the very least. I am probably forgetting something.

[Recnik in reply to kitnkaboodle]

Somehow we managed to convince them to do all this, we are waiting for the results.

Although they still deny the autoimmune disease, but say that these are the psychological consequences of encephalitis, that it is for psychiatry.

What should I do next? I don't want him to go to psychiatry, I think his condition will worsen there

[kitnkaboodle in reply to Recnik]

Four years later, they are telling me the same thing. Functional neurologic disorder and non-epileptic seizures and depression and anxiety and post-traumatic stress and agoraphobia. The thing is—all of these are SECONDARY to the original neuro-inflammatory disease.

Are they saying all of his symptoms of autoimmune encephalitis are actually “only” psychiatric? Has an antibody been found? Does he respond to immunotherapies?

[Recnik in reply to kitnkaboodle]

That's what they said before they admitted him to the clinic, that it wasn't for them...but they still admitted him and the diagnosis is ongoing, we'll see when the test results arrive

[kitnkaboodle in reply to Recnik]

Keep pushing. I know it's hard.