viral encephalitis

[GIL910]

Hi

My mom went into hospital in Aug 2021 after she became really ill at home . She ended up in an induced coma . She was diagnosed with viral encephalitis.

She was in hospital for 7 months.

Since been out of hospital Jan 2022 she has had had a bumpy ride. She had shingles and re-occurring UTI’s been in and out of hospital.

Does anyone else know why she suffers issues with issues temperature she says she often feels like a burning sensation all over and struggles to eat her tongue feel soar.

It been over 2 years now is that too early to say if this as good as it gets.

[kitnkaboodle]

Sorry about your mom. That’s so hard.

I have various temperature and sensation/sensory issues as well.

Honestly, two years is still super early. She might still heal more. I won’t ever fully recover or feel like I never got sick, but I am still improving. Almost imperceptibly.

Take care and be patient,

Kit

[GIL910 in reply to kitnkaboodle]

Thank you. Really appreciate your kind words

[kitnkaboodle in reply to GIL910]

Happy to try to answer additional questions, as they come up.

[Kekupua]

So sorry your mom has had to go through so much. My wife spent a long time in hospital recovering too. Many of the problems she was left when she was able to come home with have faded with time but some are more persistent than others! Temperature has been a recurring one - thinking it’s cold when it’s not for example can result in wearing a lot more clothes than are needed. Life is fundamentally different in so many ways and we have both had to adapt. But recovery takes many forms and can be hard to spot when you are close by - so hang in there and as kitnkaboodle says, be patient. We are four years out and eventually I guess I will stop counting - though that seems a way off yet. Bon courage!

[GIL910 in reply to Kekupua]

Thank you really appreciate your reply .

[Gandalf2]

Everyone tends to vary. Ups and downs, fatigue, memory loss and the rest.

I'm into my 4th year and have made massive progress compared to when I was discharged. I'm 74 this year so don't know whether I'm just getting old or it's the Enc and Thyroidism. I still don't quite think the man in the mirror is me. I'm sure it's all some complex prank and I'll suddenly come around and join in with the laughter.

Oh well, we all still have a lot to offer and can help and encourage. Try Scrabble, crosswords and cards.

Happy New Year and look after yourself. G2

[GIL910 in reply to Gandalf2]

Thank you. It is good to hear that someone close to my moms age has seen improvement. Recently it seems like she gone back in her recovery .

[HSE_Survivor]

In my first year of recovery , my brain couldn’t recognise the difference between hot and cold . We had a hot summer , but I needed thermal pyjamas & the heating on when I was in bed . My husband had to sleep downstairs .

Then that winter I had no sense of cold, and I didn’t want to wear a coat outside as I felt hot. It was the cause of big arguments between me & my husband .

We were told the damage caused by E had affected my brain’s ability to recognise temperature accurately . Things did improve in the second year of recovery .

I hope your mum improves, too, 🤞