Happy belated Thanksgiving from the USA. It's been about a year since my first post on here, and I am so thankful for this online community. Our chats raise my spirits at the time and after, as I remember funny quips or thoughtful advice throughout my day.
I know I'm very delayed in responding to Wygella , Remos , OldGnome , Gandalf2 , and I forget who else. I'm still alive (in a manner of speaking), but I've been struggling recently with aid applications, disability evaluations, and medical appointments and treatments. Now COVID is circulating in my family... I'm probably next.
Anyway, thank you to everyone for being on here and encouraging each other. It has made this last year a little bit more bearable for me.
🤍
Kit
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kitnkaboodle
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Happy belated thanksgiving from the UK to the USA!
I'm also grateful for our online community too!
I wouldn't worry about being delayed in responding to people, sometimes life gets in the way - meaning we might have stuff in our personal lives that are priority and attend to them first. I haven't posted much in the last year either so you are not the only one Kitnkaboodle.
I'm ever so so sorry to hear that Covid is circulating in your family oh my gosh. I hope and pray that you don"t catch it my dear friend. I'm also ever so so sorry to hear that you are struggling with aid applications and disability evaluations.
Could you please give me some examples of what aid applications and evaluations for your disability so I can get a better insight and then I might be able to help.
How are your medical appointments going? I hope some good comes out of them whatever they are.
I mean ok maybe I can't empathise, but the most important thing is I care about all the E peeps on here and I'm always happy to help whivh is why I have been a volunteer for the Encephalitis for practically 3 years - officially in Febtuary.
If there is anything I can do to help pleasw don't hesitate to ask me and I will do it.
I know I'm probably not much use to others on here because of the fact I had encephalitis the day after my first birthday and fortunately I haven't been disabled or even given being alive a thought it has just been "normality" to me, however odd/strange/weird that may sound to other E warriors.
However, I can see where you are coming from though and it's understandable you are trying to adapt to your new life which sounds very difficult for you. Do you have any family/friends who could maybe help you out?
I don't know what medical treatment you are receiving and what further medical treatment/advice you might need.
The Encephalitis Society have a helpline number you can ring +44(0)1653 699599 if you need any help/support they are always happy to help and they are lovely to talk to.
When I was in my earliest stages of recovery unfortunately the Encephalitis Society wasn't even heard of back in the 1970's, you wrre lucky to find a doctor who knew what encephalitis was, but they had no idea of the long term after effects i.e brain injury etc.
Sorry I have ranted on a bit much about myself but I hope I have helped in some way or maybe I can help after you reply (in your own time) no rush at all to reply/respond.
Hello Kitnkaboodle!! Hope Thanksgiving was a good one for you!
The day before Thanksgiving I stocked up on supplies at the store and of course, I had to get another bag of cat food. I just KNEW you would appear within 48 hours of that purchase! 😆
Hopefully you can avoid the Covid bug but be careful if you get it. (Stay in bed and don't do anything!!) Hopefully, you have one of those free tests you can receive in the mail, to test for it. I got hit pretty hard and was in a sort of "woozy" condition for a few days and had to be off of work for about 3 weeks as I recall. Still, I recovered and am here to cook for me and the pets.
No worries whatsoever about being "late" in replying to anything. We all know how life is after the big-e.
I'll keep this message short which is unusual for me! Now hold on, here comes Christmas and New Years!!
Hoping all progresses well with all of your efforts in securing some assistance from SSI, too.
Hi Kitnkaboodle. Like we’re all saying, never worry about delays in replying. We all understand. Normal life can get in the way and then there is post E life that has a knack of getting in the way more frequently! 😊.
You certainly have more than your fair share of post E stuff too. I’m so sorry. Praying this all gets sorted for you soon and the process smooths out.
I too really value these chats. Just knowing other people get it, but can still find time to cheer us on and up when we’re down and vica versa means so much. Take care.
YAY! Such a delight to hear from Kitnkaboodle. Your sharing and simply checking in is always uplifting. Whatever you do, hang in there. The disability process is just another journey that needs to be seen to the end. You got this!
What a lovely little note. Made me a bit weepy (not hard to do these days).
It’s a very strange, surreal, bewildering, tormenting world that we all have to live in whilst on our journeys. None of us quite the same in some ways but exactly the same in others. Hopeless, helpless - just some of the words I use to try and explain to others what life after E is like.
So Kit, we all know we can’t always respond to each other in as timely a manner as we would like. However it’s somewhat reassuring that on this site we are all “normal” and can offer both hope and comfort to each other often in the bleakest of times.
Came across this quote which I thought was quite apt:-“Be strong because things will get better. It may be stormy now but it never rains forever.”
Hey kitnkaboodle – this is a great group. We all have different experiences but so similar in many ways too. I’m guessing many of us nod in agreement as we read the posts that sum up our understanding of encephalitis – ie. that anything goes!
With no offence to the medical people or even the loved ones around us but … the only people that really understand us are the fellow encephalitis sufferers here. It’s not a club anyone would want to join but now we’re here, I for one certainly wouldn’t want to leave it!
I wish I could find more time to read and respond to posts on this group. Honestly, I read posts and want to reply often but end up forgetting or not finding the time. My two boys certainly keep me very busy – brain-wise and everything-wise!
Anyway, all the best to you and everyone else on here. Here’s to a good end of the year team.
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