i seen a nero consultant and was told i have m e due to tests he done, it was very painfull and has left me in a lot of pain ,

[murp]

and I am going for a MRI scan on neck , can you let me know what m e means

many Thanks.

[Hedwig121]

Hi Murp

sounds as though you have been through a lot and are confused about the whole thing.

M.E is short for Myalgic Encephalomyelitis. Sometimes people call it Chronic Fatigue Syndrome or CFS for short. Because the symptoms of ME are like so many other conditions, the doctor will have done all the tests to make sure that you didn't have something else. By excluding all other illnesses, is a diagnosis of ME given.

[murp in reply to Hedwig121]

Thank you for your reply, this helps, was confused when I was told i had me as I thought I would need a blood test to make sure thats what i got.As I have got a mri scan next saturday to get done, so hope I may get a picture, of whats going on. I am known to have pernicious anaemia, and on injections for that, but that was dignosed with a blood test, and also get infusions for my bones, oesoporises, plus got a bladder problem,but never heard of m e before. The consultant, nero, explained it like , when a laptop frezeses, that what happens to the brain, although the bits work, the measages does not get to them.

It did scare me, as got a lot of mobility problem, but you have helped me to understand a bit more about the condiction of m e.

Thanks

[Hedwig121 in reply to murp]

Hi murp

glad to be able to help.

You will have blood taken for your other health conditions, so they can see what's going on from them. Have you had any other tests done for your ME? I'm guessing you were told you had a "Functional Disorder" as some docs use the image of a computer to explain what's wrong.

If you feel that you want to speak to someone, if you have local ME self help group, they will be able to help you. You can get all sorts of information and meet others with ME.

Happy to reply on here, to any other questions you might have.

Good luck getting the MRI done.

[murp in reply to Hedwig121]

Thank you so much for your quick reply, it makes me feel I am not on my own. My Husband is great and very caring towards me plus he is my carer.I look up on the laptop for me socieity and got a number to call them, i did and they are sending me a book all about m e. Thanks..

I had loads of blood tests done for my health pernicious anaemia and get injections every 3 months for the rest of my life b12. I also get infusions every year now for my bones osoposeroies, it was every 3 months but last year they put me on a stronger dose and only have to get it done yearly, and bone denity scan every two years, to check what going on.

I also have nutcracker oesophagus which I get 9 injections in the gullet, was getting every 4 weeks for a while. now getting checked to find out how the presure is, if it goes high i will have another9 botox injections very soon, after they check the presures, it was not helping at the begining, but now it is, as i got a good consultant in leicester. and he is very good with my other health issues, as I got to self cafertate, was on a bag but learned to try to self cafertate, so far so good, plus my bowel which I had to do for years,I learned to live with all of this and I try to keep myself going, and not let it beat me, I had a very bad accident years ago which left with a mobility and weak spine and one consultant told me it may be due to this as you get older, and relaspes can occur from it at a later date,

As i did have a few years were i could work but in 2010 my health just went down hill.

About two months ago i took very bad and was rushed to hosiptal with the left hand side right down to my leg went numb and then blackout and slurring my words, In the hospital they at fist sent a stroke nurse to see me to check me out, got a ct scan done, but that was okay I think, and a fews days later I was allowed home, but my attack happent again but this time with a warning, were before I had none.

I did not want a mri scan as had one about a year ago and it made me very ill.

But my doc said it would be best to see the neroligist again just to be on the safe side,got the appointment with in a week.

As i mention to you before I seen the nero, and he check me over with varias tools they use but when , he asked me to lift my arm or legs on my own I couls not do it, so he did and I cried with pain right down from my neck into my spine, been like this since, but slightly esen down a bit. He told me and my husband I had cfs,me I asked what that meant and he said ME.

and told me take one day at a time, and he insisted on me having a mri scan on the neck cerival spine.

Because I was in so much pain I agreed, he did say that the mri may come back with a lot of wear and tear considering my age as well 55. I asked him would my mobility get weaker and he told me my doc would help me to understand my condicition.

My doc been great and told me it was like a wasage but to try and stay mobile as much as I can as to not get in a chair, and try to use the aids I been using for years, I do agree as he is a great doctor, and he was the one that dicovered my other health issues.

He away at the moment and will see him in a fews weeks after I get my mri scan.

I think what happen to me was I could not under stand the condicition cfs. but when the consultant mention me and I been emailing yourself I am getting to try and understand what it means but i had no blood test for this and I think thats why its hard for me whem I was told i got me.

If I had a blood test like all my other condicitions I would then may have took it on board, thats what I got m e.

As I have heard of m s but not m e.

Athough he is a nerologist , its hard for me to take it on board I got this, m e maybe the mri scan can prove that and thats why he is sending me so quick i do not know, but I do know he is very good as he dicovered my son had eplipsy many years through a c t scan,

Thank you so much for your kind help much appricated a lot

Just need to understand this me a bit more ,

Thank you