Which of the following best describes the... - Dystonia Society
Which of the following best describes the events which led to your diagnosis of dystonia?
5
I was being investigated by my doctor(s) for another problem during which time the dystonia was discovered
3
Other (please comment below)
2
I had symptoms/I noticed a bodily change and went to see a doctor
1
I had symptoms/I noticed a bodily change and went/was taken to Accident and Emergency
0
I had seen a doctor with symptoms, but went/was taken to Accident and Emergency (A&E) when things worsened
1 Reply
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Hi,
I had eye problems which I complained about and the first referral told me I was being lazy with my eyes whilst my rheumatoidologist did blood tests for sjogren's as I had recently been diagnosed with RA. it took 5 months of persistent mentioning of my eyes at any appointment I went to from that first 'you have dry eye but I think you're being lazy with your eyes' judgement to a blepharospasm diagnosis... it took the ophthalmologist all of 5 seconds to tell me what I had - another 20 minutes to explain what this thing was and what treatment was available.
Ali
Moderation team
DystoniaUKAdminPartner