Which of the following best describes the... - Dystonia Society

Dystonia Society

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Which of the following best describes the events which led to your diagnosis of dystonia?

CalvinHU•8 years ago•11 Voters

Please select one:

I had symptoms/I noticed a bodily change and went to see a doctorI had symptoms/I noticed a bodily change and went/was taken to Accident and EmergencyI had seen a doctor with symptoms, but went/was taken to Accident and Emergency (A&E) when things worsenedI was being investigated by my doctor(s) for another problem during which time the dystonia was discoveredOther (please comment below)

1 Reply

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Ali_H8 years ago

Hi,

I had eye problems which I complained about and the first referral told me I was being lazy with my eyes whilst my rheumatoidologist did blood tests for sjogren's as I had recently been diagnosed with RA. it took 5 months of persistent mentioning of my eyes at any appointment I went to from that first 'you have dry eye but I think you're being lazy with your eyes' judgement to a blepharospasm diagnosis... it took the ophthalmologist all of 5 seconds to tell me what I had - another 20 minutes to explain what this thing was and what treatment was available.

Ali

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